Independent Consultant.
Usher Institute of Population Health Sciences and Informatics, University of Edinburgh.
Int J Technol Assess Health Care. 2019;35(4):266-272. doi: 10.1017/S0266462319000552. Epub 2019 Jul 24.
As more health technology assessment (HTA) bodies seek to implement patient involvement, there is a desire to learn from other HTA bodies about their experiences and understand what approaches can be used and which ones make a real difference to HTA. This is difficult, as the impact of patient involvement in HTA is not well documented. This study aims to promote further discussion about the ways in which patient involvement can impact HTAs by studying stories of impact.
In a multi-stakeholder workshop, experts leading patient involvement in four HTA bodies shared examples of HTAs where they believed patient involvement made a difference, then they reflected on these impact stories within the wider context of impact evaluation.
The HTA bodies drew on patient input and patient-based evidence to inform their HTAs. The patient involvement was observed to elucidate patients' experiences, needs and preferences which, in turn, was observed to influence the HTA recommendations about optimal use of technologies, including taking account of issues for sub-groups, outcomes that matter to patients and educational needs.
Personal stories of patient involvement may enable a wider understanding of different approaches to and impact of patient involvement. The examples relate to both patient input and patient-based evidence and highlight the role that patient involvement can play in reducing uncertainties and complementing the clinical and economic evidence in HTA. They suggest that impact can be seen in recommendations about how and when a technology is used.
随着越来越多的健康技术评估（HTA）机构寻求实施患者参与，人们希望从其他 HTA 机构学习其经验，并了解可以采用哪些方法以及哪些方法对 HTA 有真正的影响。这很困难，因为患者参与 HTA 的影响并没有得到很好的记录。本研究旨在通过研究影响故事，进一步探讨患者参与如何影响 HTA，从而促进进一步的讨论。
在一个多利益相关者研讨会上，四位 HTA 机构的患者参与专家分享了他们认为患者参与产生影响的 HTA 案例，然后在更广泛的影响评估背景下对这些影响故事进行了反思。
HTA 机构利用患者的投入和基于患者的证据来为他们的 HTA 提供信息。患者参与被观察到可以阐明患者的经验、需求和偏好，这反过来又被观察到影响了 HTA 关于技术最佳使用的建议，包括考虑亚组问题、对患者重要的结果和教育需求。
患者参与的个人故事可能使人们更广泛地了解患者参与的不同方法和影响。这些例子涉及到患者的投入和基于患者的证据，并强调了患者参与在减少不确定性和补充 HTA 中的临床和经济证据方面可以发挥的作用。它们表明，影响可以在关于技术如何使用以及何时使用的建议中看到。
