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本文引用的文献

1
Critical epidemiology in action: Research for and by indigenous peoples.实践中的批判性流行病学:原住民开展的研究及为原住民开展的研究
SSM Popul Health. 2018 Sep 10;6:98-106. doi: 10.1016/j.ssmph.2018.09.003. eCollection 2018 Dec.
2
Critical reflections from a community-based participatory research course.基于社区参与式研究课程的批判性反思
Educ Health (Abingdon). 2013 Sep-Dec;26(3):178-82. doi: 10.4103/1357-6283.125996.
3
Research ethics and indigenous communities.研究伦理与原住民社区。
Am J Public Health. 2013 Dec;103(12):2146-52. doi: 10.2105/AJPH.2013.301522. Epub 2013 Oct 17.
4
Uncovering the benefits of participatory research: implications of a realist review for health research and practice.揭示参与式研究的益处:对健康研究和实践的现实主义综述的启示。
Milbank Q. 2012 Jun;90(2):311-46. doi: 10.1111/j.1468-0009.2012.00665.x.
5
Conducting research with tribal communities: sovereignty, ethics, and data-sharing issues.与部落社区合作开展研究:主权、伦理和数据共享问题。
Environ Health Perspect. 2012 Jan;120(1):6-10. doi: 10.1289/ehp.1103904. Epub 2011 Sep 2.
6
Building and maintaining trust in a community-based participatory research partnership.在基于社区的参与性研究伙伴关系中建立和维持信任。
Am J Public Health. 2008 Aug;98(8):1398-406. doi: 10.2105/AJPH.2007.125757. Epub 2008 Jun 12.
7
Using community-based participatory research to address health disparities.运用基于社区的参与性研究来解决健康差异问题。
Health Promot Pract. 2006 Jul;7(3):312-23. doi: 10.1177/1524839906289376. Epub 2006 Jun 7.
8
Tribal participatory research: mechanisms of a collaborative model.部落参与式研究:一种合作模式的机制
Am J Community Psychol. 2003 Dec;32(3-4):207-16. doi: 10.1023/b:ajcp.0000004742.39858.c5.
9
Methods for pre-testing and piloting survey questions: illustrations from the KENQOL survey of health-related quality of life.预测试和试点调查问题的方法:来自肯尼亚生活质量(KENQOL)健康相关生活质量调查的实例
Health Policy Plan. 2002 Sep;17(3):322-30. doi: 10.1093/heapol/17.3.322.
10
Review of community-based research: assessing partnership approaches to improve public health.基于社区的研究综述:评估改善公众健康的伙伴关系方法。
Annu Rev Public Health. 1998;19:173-202. doi: 10.1146/annurev.publhealth.19.1.173.

调查问卷开发:设计和实施过程中的社区参与。

Survey Development: Community Involvement in the Design and Implementation Process.

机构信息

Allyson Kelley & Associates PLLC, Sandia Park, New Mexico (Dr Kelley and Mss Fisher and Matt); and Rocky Mountain Tribal Leaders Council, Tribal Epidemiology Center, (Messrs Piccione and Andreini and Ms Bingham).

出版信息

J Public Health Manag Pract. 2019 Sep/Oct;25 Suppl 5, Tribal Epidemiology Centers: Advancing Public Health in Indian Country for Over 20 Years(Suppl 5 TRIBAL EPIDEMIOLOGY CENTERS ADVANCING PUBLIC HEALTH IN INDIAN COUNTRY FOR OVER 20 YEARS):S77-S83. doi: 10.1097/PHH.0000000000001016.

DOI:10.1097/PHH.0000000000001016
PMID:31348193
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC6662621/
Abstract

Documenting Tribal health priorities is needed to inform research agendas, policy efforts, advocacy, and funding. However, published literature rarely documents the methods used to develop surveys in Indigenous communities. This methods paper includes two objectives: (1) increase knowledge and understanding about the importance of community involvement in public health activities; and (2) provide an example of how the Rocky Mountain Tribal Leaders Council Epidemiology Center (RMTEC) worked with one Tribal community to develop a health priorities survey. This paper describes how the RMTEC worked with a Tribal community and Tribal College students to develop, pilot, and revise a health priorities survey. Recommendations focus on the need for more culturally-responsive survey methods, the importance of building Tribal capacity for health research, and the value of piloting surveys in communities prior to implementation.

摘要

记录部落健康优先事项对于告知研究议程、政策努力、宣传和资金支持是必要的。然而,已发表的文献很少记录在原住民社区中开发调查的方法。本方法论文有两个目标:(1)提高对社区参与公共卫生活动的重要性的认识和理解;(2)提供一个例子,说明落基山部落领袖理事会流行病学中心(RMTEC)如何与一个部落社区合作开发健康优先事项调查。本文描述了 RMTEC 如何与一个部落社区和部落学院的学生合作,开发、试点和修改健康优先事项调查。建议侧重于需要更具文化响应性的调查方法,建设部落健康研究能力的重要性,以及在社区实施之前对调查进行试点的价值。