Division of Supportive and Palliative Care, National Cancer Centre, Singapore.
Division of Supportive and Palliative Care, National Cancer Centre, Singapore; Lien Centre for Palliative Care, Duke-NUS Medical School, Singapore.
J Pain Symptom Manage. 2019 Nov;58(5):878-885.e2. doi: 10.1016/j.jpainsymman.2019.07.018. Epub 2019 Jul 23.
Family satisfaction with care is an important quality indicator in palliative care.
This study aimed to translate and validate the 10-item Family Satisfaction with End-of-Life Care (FAMCARE) tool.
Family caregivers of patients with advanced cancer were recruited. FAMCARE was translated from English to Chinese using a forward and backward translation process. Chinese-speaking caregivers were interviewed with the preliminary Chinese FAMCARE, and phrasing was edited to ensure clarity of the items. Subsequently, a baseline and follow-up survey in English and the finalized Chinese version were performed to assess psychometric properties. Cronbach's alpha (α) and intraclass correlation coefficient were used for internal consistency and test-retest reliability, respectively. Validity was assessed with Spearman's correlation coefficient (r). The Comprehensive Needs Assessment Tool-Caregiver (CNAT-C) and a one-item assessment by caregivers regarding "good-care" acted as a validity criterion. Pooled analysis of both languages and language-specific analyses were performed.
There were 259 participants; 134 and 125 participants filled in the English and Chinese versions, respectively. Pooled analysis showed that the intraclass correlation coefficient of FAMCARE was 0.95; α was 0.91. There was a moderate positive correlation between the total FAMCARE scores and "good-care" (r = 0.54) and a moderate negative correlation between the total FAMCARE score and the CNAT-C "Healthcare Staff" domain (r = 0.41). There was a weak negative correlation between the total FAMCARE score and the CNAT-C domain of "family and social support" (r = -0.13). Language-specific analyses revealed similar results regarding FAMCARE's psychometric properties.
FAMCARE showed good reliability and validity.
家庭对临终关怀的满意度是姑息治疗的一个重要质量指标。
本研究旨在翻译和验证 10 项家庭对临终关怀满意度量表（FAMCARE）。
招募晚期癌症患者的家庭照顾者。使用正向和反向翻译过程将 FAMCARE 从英文翻译成中文。用初步的中文 FAMCARE 对讲中文的照顾者进行访谈，并对措辞进行编辑，以确保项目清晰易懂。随后，用英语和最终的中文版本进行基线和随访调查，以评估心理测量特性。Cronbach's alpha（α）和组内相关系数分别用于内部一致性和测试-重测信度。用 Spearman 相关系数（r）评估效度。综合需求评估工具-照顾者（CNAT-C）和照顾者对“良好照顾”的一项评估作为效度标准。进行了两种语言的综合分析和语言特异性分析。
共有 259 名参与者；134 名和 125 名参与者分别填写了英文和中文版本。综合分析显示，FAMCARE 的组内相关系数为 0.95；α为 0.91。FAMCARE 总分与“良好照顾”呈中度正相关（r=0.54），与 CNAT-C“医护人员”领域呈中度负相关（r=0.41）。FAMCARE 总分与 CNAT-C“家庭和社会支持”领域呈弱负相关（r=-0.13）。语言特异性分析显示，FAMCARE 的心理测量特性也具有相似的结果。
FAMCARE 具有良好的信度和效度。
