Chattat Rabih, Ottoboni Giovanni, Zeneli Anita, Berardi Maria Alejandra, Cossu Veronica, Maltoni Marco
Department of Psychology, Alma Mater Studiorum-University of Bologna, Viale Berti Pichat, 5, 40127, Bologna, Italy.
Nursing Service, Istituto Scientifico Romagnolo per lo Studio e la Cura dei Tumori (IRST) IRCCS, Via Maroncelli 40, 47014, Meldola, Italy.
Support Care Cancer. 2016 Sep;24(9):3821-30. doi: 10.1007/s00520-016-3187-1. Epub 2016 Apr 11.
Evaluation of the quality of care is a key element that healthcare providers now take into consideration to meet patients' needs, expectations, and values. The FAMCARE scale is one of the most important instruments available to assess the level of satisfaction about care received by patients and families. We describe the validation process used to develop an Italian version (IF) of the original FAMCARE scale for caregivers.
The IF was prepared according to standard guidelines for translation and transcultural adaptation of self-reported measures. The scale was self-administered to 132 informal caregivers of patients with cancer treated with curative and/or palliative care in a hospice, outpatient, or inpatient setting for at least 1 month. The participant group was composed of spouses (47.73 %), children (31.82 %), siblings (3.03 %), or other relatives (17.42 %). All participants simultaneously completed the EuroQol-5D (EQ-5D) questionnaire to test the construct validity. Twenty-two percent of randomly chosen participants re-completed the test after 1 month to evaluate IF test-retest stability.
The IF showed a strong reliability with internal consistency [α = 0.93, confidence intervals (CI) = 0.91-0.95] and test-retest stability (Pearson r = 0.38; Kendall's tau-b = 0,25; Spearman's rho =0.34). Factor analysis identified four factors capable of explaining the 63 % total variance which did not change after the Varimax normalized rotation. Notwithstanding the lack of correlation with the VAS component of the EQ-5D questionnaire, our results highlighted robust psychometric properties of the IF.
IF is a valid translation of the FAMCARE scale and can be used to assess caregiver satisfaction within the Italian context of cancer palliative care.
评估医疗质量是医疗服务提供者如今为满足患者需求、期望和价值观而考虑的关键要素。FAMCARE量表是用于评估患者及其家属对所接受护理满意度水平的最重要工具之一。我们描述了用于开发适用于照护者的原始FAMCARE量表意大利语版本（IF）的验证过程。
IF是根据自我报告测量工具的翻译和跨文化调适标准指南编制的。该量表由132名在临终关怀机构、门诊或住院环境中接受了至少1个月的根治性和/或姑息性治疗的癌症患者的非正式照护者自行填写。参与者群体包括配偶（47.73%）、子女（31.82%）、兄弟姐妹（3.03%）或其他亲属（17.42%）。所有参与者同时完成欧洲五维健康量表（EQ-5D）问卷以测试结构效度。22%随机选择的参与者在1个月后重新完成测试以评估IF的重测稳定性。
IF显示出很强的可靠性，内部一致性[α = 0.93，置信区间（CI）= 0.91 - 0.95]和重测稳定性（Pearson相关系数r = 0.38；Kendall's tau-b = 0.25；Spearman's rho = 0.34）。因子分析确定了四个能够解释63%总方差的因子，在方差最大化正交旋转后这些因子没有变化。尽管与EQ-5D问卷的视觉模拟量表（VAS）部分缺乏相关性，但我们的结果突出了IF强大的心理测量特性。
IF是FAMCARE量表的有效翻译版本，可用于评估意大利癌症姑息治疗背景下照护者的满意度。
