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患者报告结局测量需要患者偏好信息测量:标准化结局测量缺乏以患者为中心的护理所需的偏好敏感性。

PROMs Need PRIMs: Standardised Outcome Measures Lack the Preference-Sensitivity Needed in Person-Centred Care.

作者信息

Kaltoft Mette Kjer, Dowie Jack

机构信息

University of Southern Denmark.

London School of Hygiene and Tropical Medicine.

出版信息

Stud Health Technol Inform. 2019 Jul 4;262:118-121. doi: 10.3233/SHTI190031.

DOI:10.3233/SHTI190031
PMID:31349280
Abstract

A growing number of condition-specific standard outcome sets have been developed by the International Consortium for Health Outcomes Measurement in pursuit of 'value-based care'. These sets embrace many Patient-Reported Outcome Measures (PROMs), reflecting a simultaneous commitment to 'patient-centred care'. However, none of these sets embody recognition of the preference-sensitive nature of the decisions that eventually generate the outcome database. 'Patient-Reported Importance Measures' (PRIMs) are the valid source of the required preferences. The ICHOM Stroke standard set is input into a hypothetical Multi-Criteria Decision Analysis-based decision support tool to provide simple confirmation that PROMs should be preference-mix adjusted as well as case-mix adjusted. PROMs need PRIMs if value-based care is to be personalised values-based care.

摘要

为了追求“基于价值的医疗”,国际健康结果测量协会已经开发了越来越多针对特定病症的标准结局集。这些集合包含了许多患者报告结局测量指标(PROMs),体现了对“以患者为中心的医疗”的同时承诺。然而,这些集合中没有一个体现出对最终生成结局数据库的决策中偏好敏感性质的认识。“患者报告重要性测量指标”(PRIMs)是所需偏好的有效来源。将国际健康结果测量协会(ICHOM)卒中标准集输入到一个基于多标准决策分析的假设决策支持工具中,以简单确认PROMs应进行偏好混合调整以及病例组合调整。如果要实现基于价值的个性化医疗,PROMs就需要PRIMs。

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