Pancer Max, Manganaro Melissa, Pace Isabella, Marion Patrick, Gagnon Dany H, Laramée Marie-Thérèse, Messier Frédéric, Amari Fatima, Ahmed Sara
School of Physical & Occupational Therapy, Faculty of Medicine, McGill University, Montreal, QC, Canada.
Center for Interdisciplinary Research in Rehabilitation of Greater Montreal, Montreal, QC, Canada.
JMIR Form Res. 2019 Jul 26;3(3):e12507. doi: 10.2196/12507.
The population with a spinal cord injury (SCI) largely remains inactive following discharge from rehabilitation despite evidence on the benefits of physical activity. These individuals need to develop skills to self-manage their condition in order to prevent secondary comorbidities and rehospitalization. A Web-based physical activity portal can address this need. Few Web-based interventions incorporate theoretical frameworks, behavior change techniques, and modes of delivery into their design.
This study aimed to identify the preferred features of a Web-based self-management physical activity portal through stakeholder engagement with individuals with a spinal cord injury and health care professionals (HCPs).
An interpretative phenomenology methodology and participatory design, along with an integrated knowledge translation approach, were used to conduct this study. Convenience sampling was used to recruit individuals with an SCI living in the community, who were either interested or already engaging in physical activity, and HCPs working with individuals with an SCI, from three city-based rehabilitation sites. Individual 1-hour sessions involving navigation of an existing website and a semistructured interview were conducted with all participants. Individuals with an SCI completed a demographics questionnaire prior to the individual sessions, while demographic information of the HCPs was collected during their interviews. Additionally, all participants were asked a question on their intention to use or recommend a portal. An in-depth thematic analysis was used to derive themes from participants' responses.
Thirteen individuals with an SCI and nine HCPs participated in the study. Five core themes emerged: (1) knowledge: guidance and barrier management; (2) possibility of achievement: the risks and benefits of physical activity and modelling; (3) self-regulation strategies: action planning, goal setting, tracking, rewards, and reminders; (4) interactivity: peers and professionals; and (5) format: appearance, language, and ease of use. The mean (median) ratings of the likelihood of promoting and using a Web-based portal tailored to individuals' needs were 9.00 (8.78) and 7.75 (7.88) for HCPs and individuals with an SCI, respectively.
This study highlights features of an online self-management platform that can provide individuals with an SCI the motivation and volition to engage in physical activity. These findings will inform the design of a Web-based self-management physical activity portal to increase physical activity adherence and behavior change.
尽管有证据表明体育活动有益，但脊髓损伤（SCI）患者在康复出院后大多仍不活跃。这些个体需要培养自我管理病情的技能，以预防继发性合并症和再次住院。基于网络的体育活动门户可以满足这一需求。很少有基于网络的干预措施在设计中纳入理论框架、行为改变技术和交付方式。
本研究旨在通过与脊髓损伤患者和医疗保健专业人员（HCPs）的利益相关者参与，确定基于网络的自我管理体育活动门户的首选功能。
采用解释性现象学方法和参与式设计，以及综合知识转化方法进行本研究。采用便利抽样法，从三个城市康复机构招募居住在社区、对体育活动感兴趣或已经参与体育活动的脊髓损伤患者，以及为脊髓损伤患者提供服务的医疗保健专业人员。对所有参与者进行了为期1小时的个人会议，内容包括浏览现有网站和进行半结构化访谈。脊髓损伤患者在个人会议前完成了一份人口统计学问卷，而医疗保健专业人员的人口统计信息则在访谈期间收集。此外，还询问了所有参与者关于他们使用或推荐门户的意图的问题。采用深入的主题分析从参与者的回答中得出主题。
13名脊髓损伤患者和9名医疗保健专业人员参与了该研究。出现了五个核心主题：（1）知识：指导和障碍管理；（2）成就可能性：体育活动的风险和益处以及榜样作用；（3）自我调节策略：行动计划、目标设定、跟踪、奖励和提醒；（4）互动性：同伴和专业人员；（5）形式：外观、语言和易用性。医疗保健专业人员和脊髓损伤患者对推广和使用满足个人需求的基于网络的门户的可能性的平均（中位数）评分分别为9.00（8.78）和7.75（7.88）。
本研究突出了一个在线自我管理平台的功能，该平台可以为脊髓损伤患者提供参与体育活动的动机和意愿。这些发现将为基于网络的自我管理体育活动门户的设计提供信息，以提高体育活动的依从性和行为改变。
