Carneiro Márcia Mendonça, Farace Barbara Lopes, Ribeiro Luisa Silva de Carvalho, Silverio Raphaela Cristina Conrado C, Moreira Thais, Filho Agnaldo Lopes da Silva, Baroni Ana Luiza Lunardi Rocha, Ferreira Márcia Cristina França
Department of Gynecology and Obstetrics. School of Medicine of the Federal University of Minas Gerais. Belo Horizonte, Minas Gerais, Brazil.
Multidisciplinary Endometriosis and Chronic Pelvic Pain Team. Hospital das Clínicas da UFMG. Belo Horizonte - MG - Brazil.
JBRA Assist Reprod. 2020 Jan 30;24(1):9-12. doi: 10.5935/1518-0557.20190048.
This study aimed to evaluate the performance of our Facebook fan page and compare it to similar pages.
The authors reviewed page-specific metrics provided by Facebook, including number of fans, their age and sex, and country of origin; number of views, likes, and shares tied to our posts. A search for similar fan pages using keyword "endometriosis" found pages in Portuguese, English, and Spanish. They were analyzed for country of origin, authors, number of fans and posts, and were compared to our page.
Our fan page went online on April 2016 and 127 posts have been published up to December 2017. Most of its 1746 fans (89% women; 11% men) were Brazilians (n=1677). Our audience comprised primarily women aged 25-34 (39%) and 35-44 (30%) years. The most viewed posts discussed thrombosis and oral contraceptives (n =11078); continuous use of oral contraceptives (n=6448); deep endometriosis (n=4425); intrauterine levonorgestrel system (n=4045); IVF and endometriosis (n=2885); and endometriosis and cancer (n=2431). Our search found 399 Facebook pages from 44 different countries. The United States (n=81), Brazil (n=49), and the United Kingdom (n=46) topped the list of countries hosting pages, while most of the fan pages were written in English. The majority of the pages were active and 20% claimed they were based on science. Physicians administered four of the 10 most popular pages. Page heterogeneity prevented comparisons between them.
Men and women have visited our Facebook fan page to obtain information on endometriosis. The pages found in our search were exceedingly heterogeneous and were not compared. Developing pages with sound information is an important step toward educating individuals about endometriosis and helping them make informed choices on available treatments.
本研究旨在评估我们的Facebook粉丝页面的表现，并将其与类似页面进行比较。
作者回顾了Facebook提供的特定页面指标，包括粉丝数量、年龄、性别和原籍国；与我们帖子相关的浏览量、点赞数和分享数。使用关键词“子宫内膜异位症”搜索类似的粉丝页面，发现了葡萄牙语、英语和西班牙语的页面。对这些页面的原籍国、作者、粉丝数量和帖子数量进行了分析，并与我们的页面进行了比较。
我们的粉丝页面于2016年4月上线，截至2017年12月已发布127篇帖子。其1746名粉丝中大多数（89%为女性；11%为男性）是巴西人（n = 1677）。我们的受众主要是年龄在25 - 34岁（39%）和35 - 44岁（30%）的女性。浏览量最高的帖子讨论了血栓形成与口服避孕药（n = 11078）；口服避孕药的持续使用（n = 6448）；深部子宫内膜异位症（n = 4425）；宫内左炔诺孕酮系统（n = 4045）；体外受精与子宫内膜异位症（n = 2885）；以及子宫内膜异位症与癌症（n = 2431）。我们的搜索发现了来自44个不同国家的399个Facebook页面。美国（n = 81）、巴西（n = 49）和英国（n = 46）在拥有页面的国家名单中名列前茅，而大多数粉丝页面是用英语编写的。大多数页面很活跃，20%声称它们基于科学。10个最受欢迎的页面中有4个由医生管理。页面的异质性阻碍了它们之间的比较。
男性和女性都访问过我们的Facebook粉丝页面以获取有关子宫内膜异位症的信息。我们搜索中发现的页面极其异质，未进行比较。开发提供可靠信息的页面是朝着教育个人了解子宫内膜异位症并帮助他们就可用治疗做出明智选择迈出的重要一步。
