Department of Pulmonology, ILD Center of Excellence, St. Antonius Hospital, Nieuwegein, The Netherlands.
University of Vermont Larner College of Medicine, Burlington, Vermont, USA.
Curr Opin Pulm Med. 2019 Sep;25(5):478-483. doi: 10.1097/MCP.0000000000000602.
The review presents an overview of the scientific publications about patient perspectives in sarcoidosis.
The literature on patient perspectives in sarcoidosis is limited. Patient perspectives in sarcoidosis encompass a myriad of topics that have been addressed to some degree in the literature: patient needs and perceptions, patient-reported burden of sarcoidosis, and patient treatment priorities. Similar findings across studies were high levels of reported fatigue, a need to incorporate psychological support into the treatment plan and easy access to sarcoidosis expert centers. Furthermore, largely similar results were found across countries.
There is a growing focus in patient perspectives in terms of sarcoidosis treatment. A multidisciplinary approach including psychological support and attention to fatigue, may better reflect the needs of sarcoidosis patients. Further research on sarcoidosis patient perspectives in sarcoidosis is needed to optimize care.
本文综述了有关结节病患者视角的科学文献。
有关结节病患者视角的文献有限。结节病患者视角涵盖了文献中已经在一定程度上涉及到的众多主题：患者的需求和看法、患者报告的结节病负担，以及患者的治疗重点。研究中发现的相似发现是报告的疲劳水平高、需要将心理支持纳入治疗计划以及容易获得结节病专家中心。此外，在不同国家也发现了大致相似的结果。
人们越来越关注结节病治疗方面的患者视角。包括心理支持和关注疲劳在内的多学科方法，可能更能反映结节病患者的需求。需要进一步研究结节病患者视角，以优化护理。
