Division of Pulmonary, Allergy and Sleep Medicine, Department of Medicine, Mayo Clinic.
Department of Allergy and Immunology, Cleveland Clinic Florida, Weston, Florida, USA.
Curr Opin Allergy Clin Immunol. 2019 Oct;19(5):432-438. doi: 10.1097/ACI.0000000000000575.
Anaphylaxis is a systemic allergic reaction and without the appropriate treatment can progress fast and may be fatal. Information about allergy and immunology topics including anaphylaxis can be easily found online and are widely searched by patients as well as medical personnel. Social media and search engines not only bring a number of benefits to users but also carry risks for breaches of confidentiality and privacy, unprofessional behaviour, malpractice and litigation. Social media use by medical healthcare workers has liability risks and can result in malpractice.
We used PubMed with the terms anaphylaxis; social network; mobile apps that revealed a very small number of publications addressing the use of these platforms and anaphylaxis. Google Trends and KWFinder were used to analyse the relative search interest and absolute search volumes on 'anaphylaxis'.
Multiple sources exist on the Internet for health-related searches for both healthcare providers and patients. We analysed different websites, mobile apps, Facebook, YouTube and Twitter. To avoid any posting of patient identifiers, it is imperative to be aware of the 18 HIPAA identifiers. We list websites with accurate information about anaphylaxis for the use of both patients and healthcare professionals for purposes of patient education. Further research on health information-seeking behaviour is clearly needed.
过敏反应是一种全身性过敏反应，如果没有适当的治疗，其可能迅速发展，并可能致命。有关过敏和免疫学主题的信息，包括过敏反应，可以很容易地在网上找到，并且深受患者和医务人员的广泛搜索。社交媒体和搜索引擎不仅给用户带来了许多好处，也给隐私和机密性的泄露、不专业的行为、医疗事故和诉讼带来了风险。医务人员使用社交媒体会带来医疗事故的风险。
我们使用了 PubMed 中的术语“过敏反应”；“社交网络”；“移动应用程序”，这揭示了很少有出版物涉及这些平台和过敏反应的使用。我们使用 Google Trends 和 KWFinder 来分析“过敏反应”的相对搜索兴趣和绝对搜索量。
互联网上有多个与健康相关的搜索源，供医疗保健提供者和患者使用。我们分析了不同的网站、移动应用程序、Facebook、YouTube 和 Twitter。为了避免发布任何患者标识符，必须了解 18 个 HIPAA 标识符。我们列出了一些网站，提供有关过敏反应的准确信息，供患者和医疗保健专业人员用于患者教育。显然，需要进一步研究健康信息搜索行为。
