Saxena Rajeev C, Lehmann Ashton E, Hight A Ed, Darrow Keith, Remenschneider Aaron, Kozin Elliott D, Lee Daniel J
Department of Otolaryngology, Tufts University School of Medicine, Boston, MA.
Department of Otology and Laryngology, Harvard Medical School, Boston, MA.
J Am Acad Audiol. 2015 Feb;26(2):197-204. doi: 10.3766/jaaa.26.2.8.
More than 200,000 individuals worldwide have received a cochlear implant (CI). Social media Websites may provide a paramedical community for those who possess or are interested in a CI. The utilization patterns of social media by the CI community, however, have not been thoroughly investigated.
The purpose of this study was to investigate participation of the CI community in social media Websites.
We conducted a systematic survey of online CI-related social media sources. Using standard search engines, the search terms cochlear implant, auditory implant, forum, and blog identified relevant social media platforms and Websites. Social media participation was quantified by indices of membership and posts.
Social media sources included Facebook, Twitter, YouTube, blogs, and online forums. Each source was assigned one of six functional categories based on its description.
No intervention was performed.
We conducted all online searches in February 2014. Total counts of each CI-related social media source were summed, and descriptive statistics were calculated.
More than 350 sources were identified, including 60 Facebook groups, 36 Facebook pages, 48 Twitter accounts, 121 YouTube videos, 13 forums, and 95 blogs. The most active online communities were Twitter accounts, which totaled 35,577 members, and Facebook groups, which totaled 17,971 members. CI users participated in Facebook groups primarily for general information/support (68%). Online forums were the next most active online communities by membership. The largest forum contained approximately 9,500 topics with roughly 127,000 posts. CI users primarily shared personal stories through blogs (92%), Twitter (71%), and YouTube (62%).
The CI community engages in the use of a wide range of online social media sources. The CI community uses social media for support, advocacy, rehabilitation information, research endeavors, and sharing of personal experiences. Future studies are needed to investigate how social media Websites may be harnessed to improve patient-provider relationships and potentially used to augment patient education.
全球有超过20万人接受了人工耳蜗植入（CI）。社交媒体网站可能为那些拥有人工耳蜗或对其感兴趣的人提供一个准医疗社区。然而，人工耳蜗社区对社交媒体的使用模式尚未得到充分研究。
本研究的目的是调查人工耳蜗社区在社交媒体网站上的参与情况。
我们对与人工耳蜗相关的在线社交媒体来源进行了系统调查。使用标准搜索引擎，搜索词“人工耳蜗”“听觉植入物”“论坛”和“博客”确定了相关的社交媒体平台和网站。通过会员数量和帖子数量指标对社交媒体参与情况进行量化。
社交媒体来源包括Facebook、Twitter、YouTube、博客和在线论坛。根据每个来源的描述，将其分配到六个功能类别之一。
未实施干预。
我们于2014年2月进行了所有在线搜索。汇总了每个与人工耳蜗相关的社交媒体来源的总数，并计算了描述性统计数据。
共识别出超过350个来源，包括60个Facebook群组、36个Facebook页面、48个Twitter账户、121个YouTube视频、13个论坛和95个博客。最活跃的在线社区是Twitter账户，共有35577名成员，以及Facebook群组，共有17971名成员。人工耳蜗用户参与Facebook群组主要是为了获取一般信息/支持（68%）。按会员数量计算，在线论坛是第二活跃的在线社区。最大的论坛包含约9500个主题，约127000个帖子。人工耳蜗用户主要通过博客（92%）、Twitter（71%）和YouTube（62%）分享个人故事。
人工耳蜗社区参与使用多种在线社交媒体来源。人工耳蜗社区利用社交媒体获取支持、进行宣传、获取康复信息、开展研究以及分享个人经历。未来需要开展研究，以调查如何利用社交媒体网站改善医患关系，并有可能用于加强患者教育。
