Department of Women's and Children's Health, University of Otago , Dunedin, New Zealand.
Paediatric Endocrinology, Southern District Health Board , Dunedin, New Zealand.
Behav Sleep Med. 2020 Sep-Oct;18(5):622-636. doi: 10.1080/15402002.2019.1647207. Epub 2019 Aug 1.
Type 1 diabetes mellitus (T1DM) is a common chronic illness of childhood, with parents assuming considerable responsibility for night-time diabetes caregiving. This qualitative study explored diabetes-related factors affecting, and solutions proposed to improve, parental sleep.
10 mothers and 10 fathers of children ≤18 years of age with T1DM in Otago, New Zealand.
Semi-structured individual interviews were audio-recorded, transcribed, and systematically coded for themes. Parents completed the Pittsburgh Sleep Quality Index (PSQI) and habitual sleep of parents and children were assessed via 7-day actigraphy.
Parents (n = 20) and their children with T1DM (n = 16) were aged between 32 and 54 years, and 1 and 17 years, respectively. PSQI revealed poor quality sleep in 13/20 parents. A range of diabetes-related factors, including glucose monitoring and fear of hypoglycemia, contributed to parental sleep disturbance, including awakenings and the perception of "sleeping lightly". Two distinct time periods resulted in greater sleep disturbance, notably, following T1DM diagnosis and when transitioning to using a new diabetes technology. Factors influencing maternal and paternal sleep were similar, but, generally, mothers described greater night-time care burden and sleep disturbance. While the use of diabetes technologies was generally advocated to improve parental sleep and the provision of nocturnal T1DM care, they were also perceived to potentially contribute to parental sleep disturbance.
Pediatric diabetes care teams should be aware of diabetes-related factors potentially affecting parental sleep, the mixed impacts of diabetes technologies, and consider tailored parental support and education to reduce the burden of nocturnal care.
1 型糖尿病（T1DM）是一种常见的儿童慢性疾病，父母承担着相当大的夜间糖尿病护理责任。这项定性研究探讨了影响父母睡眠的与糖尿病相关的因素和提出的改善方案。
10 名来自新西兰奥塔哥的≤18 岁 T1DM 儿童的母亲和 10 名父亲。
对父母进行半结构化的个人访谈，录音、转录并进行系统编码以确定主题。父母完成匹兹堡睡眠质量指数（PSQI），并通过 7 天的活动记录仪评估父母和孩子的习惯性睡眠。
父母（n=20）及其患有 T1DM 的孩子（n=16）的年龄分别在 32 至 54 岁和 1 至 17 岁之间。PSQI 显示 13/20 的父母睡眠质量较差。一系列与糖尿病相关的因素，包括血糖监测和对低血糖的恐惧，导致了父母的睡眠障碍，包括觉醒和“浅睡”的感觉。两个不同的时间段导致了更大的睡眠障碍，尤其是在 T1DM 诊断后和过渡到使用新的糖尿病技术时。影响母亲和父亲睡眠的因素相似，但母亲普遍描述了更大的夜间护理负担和睡眠障碍。尽管糖尿病技术的使用通常被认为可以改善父母的睡眠和提供夜间 T1DM 护理，但它们也被认为可能会导致父母的睡眠障碍。
儿科糖尿病护理团队应该意识到可能影响父母睡眠的与糖尿病相关的因素、糖尿病技术的混合影响，并考虑提供量身定制的父母支持和教育，以减轻夜间护理的负担。
