Ceccato Natalie, Price Courtney
Faculty of Medicine, University of Ottawa, Ottawa, Ontario, Canada.
Healthc Manage Forum. 2019 Nov;32(6):326-328. doi: 10.1177/0840470419865851. Epub 2019 Aug 1.
Enacted in 2000, the is an important piece of legislation aimed at safeguarding an individual's right to control their personal health information. Since this time, the world of data and analytics has shifted in terms of our potential to collect, integrate, and analyze both structured and unstructured data. The implications for these data advancements are endless for our healthcare system; however, challenges influenced by our approach to collecting, accessing, and analyzing data as well as patient consent to share personal health information mean public entities lag behind commercial players in harnessing these potential benefits. While there are examples of data analytics application successes, Canadian healthcare continues to lag behind other countries and commercial sectors. We are at a pivot point for system improvements requiring a collective approach to collection, storage, linkage, and application of personal healthcare data. In the chasm of this rests how we address patient consent. All health leaders can play a central role in advancing our application of data for system improvements. Strategies to support health leaders in achieving this potential are outlined in this article.
该法案于2000年颁布，是一项旨在保障个人控制其个人健康信息权利的重要立法。自那时以来，就我们收集、整合和分析结构化及非结构化数据的潜力而言，数据和分析领域已经发生了变化。这些数据进步对我们的医疗保健系统产生的影响是无穷无尽的；然而，由于我们收集、获取和分析数据的方式以及患者对共享个人健康信息的同意所带来的挑战，意味着公共实体在利用这些潜在益处方面落后于商业机构。虽然有数据分析应用成功的例子，但加拿大医疗保健仍落后于其他国家和商业部门。我们正处于系统改进的转折点，需要采取集体方法来收集、存储、链接和应用个人医疗保健数据。在这一差距中，关键在于我们如何处理患者同意问题。所有卫生领导者都可以在推动我们将数据应用于系统改进方面发挥核心作用。本文概述了支持卫生领导者实现这一潜力的策略。
