a Department of Psychology, University of Guelph , Guelph , ON , Canada.
b Ottawa Institute of Systems Biology and Department of Biochemistry, Microbiology and Immunology, Faculty of Medicine, University of Ottawa , Ottawa , ON , Canada.
Int J Qual Stud Health Well-being. 2019 Dec;14(1):1648945. doi: 10.1080/17482631.2019.1648945.
: A growing body of scientific evidence supports the role of food and diet in the pathogenesis and management of inflammatory bowel diseases (IBD). However, little is known about the role of food and diet from the perspectives of pediatric patients and their parents. This study aimed to explore how children and adolescents with IBD and their parents coped with the illness through food and diet in their daily lives. : We conducted semi-structured interviews with 28 children and adolescents with IBD, 26 parents and one grandparent. : Two major themes, dietary strategies and family food practices, were identified through thematic analysis. There were three types of dietary strategies: food avoidance and moderation; following a specific diet; and healthy eating. For family food practices, two subthemes were identified: impact on grocery shopping, meal planning, and cooking; and maintaining routine and normality. : Our findings have important implications for the clinical care of pediatric IBD. Notably, IBD not only influenced the food practices of the pediatric patients, but also their parents and other family members. Healthcare professionals should consider the family unit when giving nutritional advice or developing nutritional guidelines. Personalized nutritional counselling and ongoing nutritional assessment are also warranted.
越来越多的科学证据表明，食物和饮食在炎症性肠病（IBD）的发病机制和治疗中起着重要作用。然而，对于儿科患者及其父母的饮食观念，我们知之甚少。本研究旨在探讨 IBD 患儿及其父母如何通过日常饮食来应对疾病。
我们对 28 名 IBD 患儿、26 名家长和 1 名祖辈进行了半结构化访谈。
通过主题分析，确定了两个主要主题，即饮食策略和家庭饮食实践。饮食策略有三种类型：避免和适度食用食物；遵循特定的饮食；健康饮食。家庭饮食实践包括两个方面：对杂货店购物、膳食计划和烹饪的影响；以及保持日常和正常。
我们的研究结果对儿科 IBD 的临床护理具有重要意义。值得注意的是，IBD 不仅影响了儿科患者的饮食实践，也影响了他们的父母和其他家庭成员。医疗保健专业人员在提供营养建议或制定营养指南时，应考虑到整个家庭。个性化的营养咨询和持续的营养评估也是必要的。
