Dirven Linda, Taphoorn Martin Jb, Groenvold Mogens, Habets Esther Jj, Aaronson Neil K, Conroy Thierry, Reijneveld Jaap C, Young Teresa, Petersen Morten Aa
Department of Neurology, Leiden University Medical Center, PO BOX 9600, 2300 RC Leiden, the Netherlands (L.D., M.J.B.T.); Department of Neurology, Medical Center Haaglanden, PO BOX 432, 2501 CK The Hague, the Netherlands (M.J.B.T., E.J.J.H.); Department of Palliative Medicine, Bispebjerg Hospital, Bakke 23 DK-2400 Copenhagen NV, Denmark(M.G., M.A.P.); Division of Psychosocial Research and Epidemiology, The Netherlands Cancer Institute, PO BOX 90203, 1006 BE Amsterdam, the Netherlands (N.K.A.); Medical Oncology Department, Institut de Cancérologie de Lorraine 6, Avenue de Bourgogne - CS 30519 54519 Vandoeuvre-lès-Nancy Cedex, France (T.C.); Department of Neurology, VU University Medical Center, PO BOX 7057, 1007 MB Amsterdam, the Netherlands (J.C.R.); Department of Neurology, Academic Medical Center, PO BOX 22660, 1100 DD Amsterdam, the Netherlands (J.C.R.); Lynda Jackson Macmillan Centre, Mount Vernon Hospital, Northwood, Middlesex HA6 2RN, UK (T.Y.).
Neurooncol Pract. 2017 Sep;4(3):189-196. doi: 10.1093/nop/npw026. Epub 2017 Jan 19.
The European Organisation for Research and Treatment of Cancer (EORTC) Quality of Life Group is developing computerized adaptive testing (CAT) versions of each scale of the EORTC Quality of Life Questionnaire (EORTC QLQ-C30). This study aims to develop an item bank for the EORTC QLQ-C30 cognitive functioning scale, which can be used for CAT.
The complete developmental approach comprised four phases: (I) conceptualization and literature search, (II) operationalization, (III) pretesting, and (IV) field-testing. This paper describes phases I-III.I) A literature search was performed to identify self-report instruments and items measuring cognitive complaints on concentration and memory. II) A multistep item-selection procedure was applied to select and generate items that were relevant and compatible with the 'QLQ-C30 item style.' III) Cancer patients from different countries evaluated the item list for wording (ie, whether items were difficult, confusing, annoying, upsetting or intrusive), and whether relevant issues were missing.
A list of 439 items was generated by the literature search. In the multistep item-selection procedure, these items were evaluated for relevance, redundancy, clarity, and response format, resulting in an list of 45 items. A total of 32 patients evaluated this item list in the pretesting phase, resulting in a preliminary list of 44 items.
Phase I-III resulted in an item list of 44 items measuring self-reported cognitive complaints that was endorsed by international experts and cancer patients in several countries. This list will be evaluated for its psychometric characteristics in phase IV.
欧洲癌症研究与治疗组织(EORTC)生活质量小组正在为EORTC生活质量问卷(EORTC QLQ-C30)的每个量表开发计算机自适应测试(CAT)版本。本研究旨在为EORTC QLQ-C30认知功能量表开发一个项目库,可用于CAT。
完整的开发方法包括四个阶段:(I)概念化和文献检索,(II)操作化,(III)预测试,以及(IV)现场测试。本文描述了I-III阶段。I)进行文献检索以识别测量注意力和记忆力方面认知主诉的自我报告工具和项目。II)应用多步骤项目选择程序来选择和生成与“QLQ-C30项目风格”相关且兼容的项目。III)来自不同国家的癌症患者评估项目列表的措辞(即项目是否困难、令人困惑、烦人、令人不安或侵扰性),以及是否遗漏了相关问题。
通过文献检索生成了439个项目的列表。在多步骤项目选择程序中,对这些项目进行了相关性、冗余性、清晰度和回答格式的评估,得出了一个45个项目的列表。共有32名患者在预测试阶段评估了该项目列表,得出了一个44个项目的初步列表。
I-III阶段产生了一个包含44个测量自我报告认知主诉项目的列表,该列表得到了国际专家和几个国家癌症患者的认可。此列表将在IV阶段对其心理测量特征进行评估。