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亲属为重症监护病房患者撰写的日记的结构和内容:一种叙述方法(DRIP 研究)。

Structure and content of diaries written by close relatives for intensive care unit patients: A narrative approach (DRIP study).

机构信息

Department of Anesthesiology, Regional Hospital Holstebro, Holstebro, Denmark.

Department of Clinical Medicine, Aarhus University, Aarhus, Denmark.

出版信息

J Adv Nurs. 2019 Jun;75(6):1296-1305. doi: 10.1111/jan.13956. Epub 2019 Feb 20.

DOI:10.1111/jan.13956
PMID:30666697
Abstract

AIM

To investigate structure and content of a nurse prompted diary written by relatives for intensive care unit (ICU) patients.

DESIGN

A narrative analysis of ICU diaries.

METHODS

From September 2015-August 2016, 12 diaries authored by 12 relatives for 12 ICU patients were sampled at 3-4 months post-ICU discharge. We used Ricoeur's hermeneutical phenomenology as a framework for a narrative analysis of the diaries. The first step was naïve reading, followed by structural analysis exploring the internal relations of the text. The structural analysis was broadened by exploring narrative structures. The last step was critical interpretation of the findings.

FINDINGS

The diaries had a clear narrative structure; the diary-timeline consisted of: Pre-ICU phase, Early ICU phase, Culmination, Recovery and Post-ICU reflection. Three themes described the content of the diary: Struggling to get the story right for the patient; striving to understand what was happening and longing to re-establish a connection with the patient. Keeping a diary was perceived by the relatives as a challenging but rewarding task.

CONCLUSION

The diary had the potential for reflection and a deeper understanding of the ICU stay. The diary served as a locus for patient and relatives to connect or re-connect, but some diaries might be too personal and emotional to share with the patient. Future research needs to explore advantages and disadvantages of ICU diaries authored by relatives.

摘要

目的

调查由亲属为重症监护病房(ICU)患者撰写的护士提示日记的结构和内容。

设计

对 ICU 日记的叙述分析。

方法

2015 年 9 月至 2016 年 8 月,在 ICU 出院后 3-4 个月,从 12 名 ICU 患者的 12 名亲属中抽取了 12 份日记。我们使用里克尔的解释学现象学作为框架,对日记进行叙述分析。第一步是盲目阅读,然后进行结构分析,探索文本的内部关系。结构分析通过探索叙述结构得到扩展。最后一步是对研究结果进行批判性解释。

结果

日记具有清晰的叙述结构;日记时间线由以下几个阶段组成:ICU 前阶段、早期 ICU 阶段、高潮、恢复和 ICU 后反思。三个主题描述了日记的内容:努力为患者讲好故事;努力理解发生了什么,并渴望与患者重新建立联系。写日记被亲属视为一项具有挑战性但有益的任务。

结论

日记具有反思和更深入了解 ICU 入住情况的潜力。日记是患者和亲属联系或重新联系的场所,但有些日记可能过于个人化和情绪化,不适合与患者分享。未来的研究需要探讨亲属撰写的 ICU 日记的优缺点。

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