School of Epidemiology and Public Health, University of Ottawa, Ottawa, Ontario, Canada.
Clinical Epidemiology Program, Ottawa Hospital Research Institute, Ottawa, Ontario, Canada.
J Eval Clin Pract. 2019 Dec;25(6):1169-1181. doi: 10.1111/jep.13258. Epub 2019 Aug 18.
The objective of the present study is to describe the development and field testing of a preference-elicitation tool for cervical cancer screening, meeting International Patient Decision Aids Standards (IPDAS) quality criteria.
We developed a tool designed to elicit women's preferences among cervical cancer screening modalities. The Ottawa Decision Support Framework and IPDAS systematic development process guided the design, and we followed IPDAS criteria for conducting a field test in a real-world setting. Using social media recruitment strategies, we identified a convenience sample of Ontario women who were currently eligible for cervical screening to test the tool. We evaluated the feasibility, acceptability, balance of information, and ability to elicit women's informed, values-based preferences using an online survey embedded in the tool.
Twenty-five women participated in the field test. Participants were aged 20 to 63 years , and identified as predominantly white (88%), living in Northern Ontario (68%), and most had university education (75%). Most participants (72%) considered the length of the website as "just right," and 100% indicated that they would find the tool useful for decision-making. Over two-thirds (68%) of participants perceived the information in the tool as "balanced." Almost all (92%) participants scored at least 4 out of 7 on the knowledge quiz, and most participants (84%) selected their preference in an informed, values-based way.
The results from our field test of this tool provide preliminary evidence of the tool's feasibility, acceptability, balance, and ability to elicit women's informed, values-based preferences among available cervical screening modalities. Further research should elicit the distribution of preferences of cervical screening modalities in other regions, using a sample who represents the screening population and a rigorous study design. It will be important for researchers and screening programmes to evaluate the tool's ability to elicit women's informed, values-based preferences compared with educational materials.
本研究旨在描述一种符合国际患者决策辅助标准（IPDAS）质量标准的宫颈癌筛查偏好评估工具的开发和现场测试。
我们开发了一种旨在评估女性对宫颈癌筛查方法偏好的工具。渥太华决策支持框架和 IPDAS 系统开发过程指导了工具的设计，我们遵循 IPDAS 标准在现实环境中进行现场测试。我们使用社交媒体招募策略，确定了一组目前有资格接受宫颈癌筛查的安大略省女性作为方便样本，以测试该工具。我们使用嵌入工具的在线调查评估了工具的可行性、可接受性、信息平衡以及评估女性知情、基于价值观的偏好的能力。
25 名女性参加了现场测试。参与者年龄在 20 至 63 岁之间，主要为白人（88%），居住在安大略省北部（68%），大多数人受过大学教育（75%）。大多数参与者（72%）认为网站的长度“恰到好处”，100%的参与者表示他们将发现该工具对决策有用。超过三分之二（68%）的参与者认为工具中的信息“平衡”。几乎所有（92%）的参与者在知识测验中至少得了 4 分，大多数参与者（84%）以知情、基于价值观的方式选择了自己的偏好。
我们对该工具的现场测试结果提供了初步证据，证明该工具具有可行性、可接受性、信息平衡以及评估女性对现有宫颈癌筛查方法的知情、基于价值观的偏好的能力。进一步的研究应该在其他地区使用代表筛查人群的样本和严格的研究设计，来评估宫颈癌筛查方法的偏好分布。研究人员和筛查项目评估该工具与教育材料相比，是否能更好地评估女性的知情、基于价值观的偏好，这将非常重要。
