Wittenberg Eve, Bharel Monica, Saada Adrianna, Santiago Emely, Bridges John F P, Weinreb Linda
Center for Health Decision Science, Harvard School of Public Health, 718 Huntington Avenue, 2nd Floor, Boston, MA, 02115, USA.
Boston Health Care for the Homeless Program, Boston, MA, USA.
Patient. 2015 Oct;8(5):455-67. doi: 10.1007/s40271-014-0110-z.
Despite having multiple risk factors, women experiencing homelessness are screened for cervical cancer at a lower rate than women in the general US population. We report on the design of a stated preference study to assess homeless women's preferences for cervical cancer screening interventions, to inform efforts to overcome this disparity.
We conducted focus groups with homeless women (n = 8) on cervical cancer screening decisions and analyzed the data using thematic analysis. We applied inclusion criteria to select factors for a stated preference survey: importance to women, relevance to providers, feasibility, and consistency with clinical experience. We conducted pretests (n = 35) to assess survey procedures (functionality, recruitment, administration) and content (understanding, comprehension, wording/language, length).
We chose best-worst scaling (BWS)-also known as object scaling-to identify decision-relevant screening intervention factors. We chose an experimental design with 11 "objects" (i.e., factors relevant to women's screening decision) presented in 11 subsets of five objects each. Of 25 objects initially identified, we selected 11 for the BWS instrument: provider-related factors: attitude, familiarity, and gender; setting-related factors: acceptance and cost; procedure-related factors: explanation during visit and timing/convenience of visit; personal fears and barriers: concerns about hygiene, addiction, and delivery/fear of results; and a general factor of feeling overwhelmed.
Good practices for the development of stated preference surveys include considered assessment of the experimental design that is used and the preference factors that are included, and pretesting of the presentation format. We demonstrate the development of a BWS study of homeless women's cervical cancer screening intervention preferences. Subsequent research will identify screening priorities to inform intervention design.
尽管有多种风险因素,但无家可归女性接受宫颈癌筛查的比例低于美国普通人群中的女性。我们报告一项陈述性偏好研究的设计,以评估无家可归女性对宫颈癌筛查干预措施的偏好,为克服这一差异的努力提供信息。
我们与无家可归女性(n = 8)进行了关于宫颈癌筛查决策的焦点小组讨论,并使用主题分析对数据进行了分析。我们应用纳入标准来选择陈述性偏好调查的因素:对女性的重要性、与提供者的相关性、可行性以及与临床经验的一致性。我们进行了预测试(n = 35),以评估调查程序(功能、招募、实施)和内容(理解、领悟、措辞/语言、长度)。
我们选择了最佳-最差尺度法(BWS)——也称为对象尺度法——来确定与决策相关的筛查干预因素。我们选择了一种实验设计,有11个“对象”(即与女性筛查决策相关的因素),每个对象分为5个对象的11个子集呈现。在最初确定的25个对象中,我们为BWS工具选择了11个:与提供者相关的因素:态度、熟悉程度和性别;与环境相关的因素:接受程度和成本;与程序相关的因素:就诊时的解释以及就诊时间/便利性;个人恐惧和障碍:对卫生、成瘾以及分娩/对结果的恐惧的担忧;以及一种总体的不知所措的因素。
陈述性偏好调查开发的良好做法包括对所使用的实验设计和所包含的偏好因素进行深思熟虑的评估,以及对呈现格式进行预测试。我们展示了一项关于无家可归女性宫颈癌筛查干预偏好的BWS研究的开发。后续研究将确定筛查重点,为干预设计提供信息。