使用（MSQoL - 54）问卷对喀土穆州苏丹多发性硬化症患者的生活质量进行评估。

Quality of life among Sudanese patients with multiple sclerosis in Khartoum state using (MSQoL-54) questionnaire.

作者信息

Ibrahim Etedal Ahmed Abu Elbasher, Gassoum Alsadig, IshagAgib Israa El Imam

机构信息

Alneelain University, Khartoum, Sudan.

The National Centre for Neurological Science, Khartoum, Sudan.

出版信息

BMC Res Notes. 2019 Aug 22;12(1):533. doi: 10.1186/s13104-019-4565-9.

DOI:10.1186/s13104-019-4565-9

PMID:31439008

原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC6704515/

Abstract

OBJECTIVE

To assess the quality of life, physical and mental factors, determine association between age, education status, disease duration and MSQOL-54 physical and Mental Health Composite scores among Sudanese patients with multiple sclerosis. This cross-section study was conducted among 32 MS patients at the National center for Neurological Science, Khartoum from January 2017 to June 2018. Using Multiple sclerosis Quality of life (MSQoL-54) questionnaire.

RESULTS

Thirty two MS patients were participated in this study, 30 (94%) were females and 2 (6%) were males, 25 (78.1%) were found in age group < 40 years overall score of MSQoL-54 was 66.4 ± 21.9, Physical Health Composite (PHC) was 71.6 ± 21.3 and Mental Health Composite (MHC) was 61.2 ± 22.4. This study indicated that, non-graduated, advanced age and longer disease duration was significantly associated with poor Physical Health Composite and Mental Health Composite.

摘要

目的

评估苏丹多发性硬化症患者的生活质量、生理和心理因素，确定年龄、教育程度、病程与MSQOL-54生理和心理健康综合评分之间的关联。这项横断面研究于2017年1月至2018年6月在喀土穆国家神经科学中心对32例多发性硬化症患者进行。使用多发性硬化症生活质量（MSQoL-54）问卷。

结果

32例多发性硬化症患者参与了本研究，其中30例（94%）为女性，2例（6%）为男性，25例（78.1%）年龄在40岁以下。MSQoL-54的总体评分为66.4±21.9，生理健康综合评分（PHC）为71.6±21.3，心理健康综合评分（MHC）为61.2±22.4。本研究表明，未毕业、高龄和较长病程与较差的生理健康综合评分和心理健康综合评分显著相关。