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评估科威特多发性硬化症患者的生活质量:一项横断面研究。

Assessing the quality of life in patients with multiple sclerosis in Kuwait: a cross sectional study.

机构信息

a Faculty of Medicine, Department of Community Medicine & Behavioral Sciences , Kuwait University , Kuwait.

出版信息

Psychol Health Med. 2018 Apr;23(4):391-399. doi: 10.1080/13548506.2017.1366660. Epub 2017 Aug 13.

Abstract

The main objective of this paper was to assess the level and the determinants of quality of life (QOL) amongst patients with multiple sclerosis (MS). A cross-sectional study was conducted among a convenience sample of 200 adult MS patients. Inclusion criteria were: MS diagnosis for at least one year, and aged 21+ years. However, exclusion criteria were: having other neurological diseases, serious cardiovascular, orthopedic or other disability precluding participation. Self-administered questionnaire employed MSQOL-54 with two outcomes: Physical Health Composite (PHC) and mental health composite (MHC). Satisfaction with Daily Occupation scale was adopted through face to face interviews. The median of PHC and MHC scores were 48.9/100, and 53.4/100 respectively. Multivariate analysis revealed that unemployment was a determinant of poor PHC, while low monthly income was a predictor of poor MHC. Additionally, low endurance and sensory problems were associated with poor PHC, and MHC, while motor problems were allied with only poor PHC. Patient's satisfaction level with performing activities of daily living was positively associated with PHC and MHC. Assessment of QOL is suggested to be comprised in medical settings.

摘要

本文的主要目的是评估多发性硬化症(MS)患者的生活质量(QOL)水平及其决定因素。采用横断面研究方法,对 200 名成年 MS 患者进行了便利抽样。纳入标准为:MS 诊断至少一年,年龄≥21 岁。但排除标准为:患有其他神经系统疾病、严重心血管、骨科或其他残疾,无法参与。采用 MSQOL-54 自我管理问卷,有两个结果:身体健康综合评分(PHC)和心理健康综合评分(MHC)。通过面对面访谈采用日常活动满意度量表。PHC 和 MHC 评分的中位数分别为 48.9/100 和 53.4/100。多变量分析显示,失业是 PHC 差的决定因素,而低收入是 MHC 差的预测因素。此外,耐力和感觉问题低与 PHC 和 MHC 差有关,而运动问题仅与 PHC 差有关。患者对日常生活活动的满意度与 PHC 和 MHC 呈正相关。建议在医疗环境中进行 QOL 评估。

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