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荷兰慢性阻塞性肺疾病患者的电子健康:范围综述。

eHealth for people with COPD in the Netherlands: a scoping review.

机构信息

Department of Public Health and Primary Care, Leiden University Medical Center, Leiden, the Netherlands.

Lung Alliance Netherlands , Amersfoort, the Netherlands.

出版信息

Int J Chron Obstruct Pulmon Dis. 2019 Jul 26;14:1681-1690. doi: 10.2147/COPD.S207187. eCollection 2019.

Abstract

In the Netherlands, almost 600,000 people had chronic obstructive pulmonary disease (COPD) in 2017. This decreases quality of life for many and each year, COPD leads to approximately 6,800 deaths and about one billion health care expenditures. It is expected that eHealth may improve access to care and reduce costs. However, there is no conclusive scientific evidence available of the added value of eHealth in COPD care. We conducted a scoping review into the use of eHealth in Dutch COPD care. The aim of the research was to provide an overview of all eHealth applications used in Dutch COPD care and to assess these applications on a number of relevant criteria. In order to make an overview of all eHealth applications aimed at COPD patients in the Netherlands, literature was searched in the electronic databases PubMed and Google Scholar. In addition, Dutch health care websites were searched for applications that have been evaluated for effectiveness and reliability. The identified eHealth applications were assessed according to five relevant quality criteria, eg, whether research has been conducted on the effectiveness. Thirteen health care programs and patient platforms in COPD care have been found that use eHealth. In addition, 13 self-care and informative websites and 15 mobile apps were found that are available to citizens and patients. Five of 13 care programs and patient platforms were found to be effective in improving quality of life or reducing hospital admissions in small pilot studies. The effectiveness of these and the other eHealth applications should be established in larger studies in the future. More research into the effectiveness of eHealth applications for COPD patients is needed. We recommend to develop a nationwide open source platform where well-evaluated eHealth applications can be showcased for patients and health care providers to improve COPD care.

摘要

2017 年,荷兰约有 60 万人患有慢性阻塞性肺疾病(COPD)。这降低了许多人的生活质量,每年 COPD 导致约 6800 人死亡和约 10 亿医疗支出。预计电子健康可能会改善获得护理的机会并降低成本。然而,目前尚无确凿的科学证据表明电子健康在 COPD 护理中的附加值。我们对荷兰 COPD 护理中使用电子健康进行了范围界定审查。研究目的是提供荷兰 COPD 护理中使用的所有电子健康应用程序的概述,并根据一些相关标准评估这些应用程序。 为了全面了解荷兰针对 COPD 患者的所有电子健康应用程序,在电子数据库 PubMed 和 Google Scholar 中搜索了文献。此外,还搜索了荷兰医疗保健网站上已针对有效性和可靠性进行评估的应用程序。根据五个相关的质量标准评估了确定的电子健康应用程序,例如是否对有效性进行了研究。 在 COPD 护理中发现了 13 种用于医疗保健的程序和患者平台,这些程序和平台都使用了电子健康技术。此外,还发现了 13 个自我护理和信息网站以及 15 个可供公民和患者使用的移动应用程序。在小型试点研究中,发现 13 个护理计划和患者平台中的 5 个可有效提高生活质量或减少住院人数。这些以及其他电子健康应用程序的有效性应在未来的更大研究中确定。 需要对 COPD 患者的电子健康应用程序的有效性进行更多研究。我们建议开发一个全国性的开源平台,在该平台上可以展示经过良好评估的电子健康应用程序,供患者和医疗保健提供者使用,以改善 COPD 护理。

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eHealth for people with COPD in the Netherlands: a scoping review.荷兰慢性阻塞性肺疾病患者的电子健康:范围综述。
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