• 文献检索
  • 文档翻译
  • 深度研究
  • 学术资讯
  • Suppr Zotero 插件Zotero 插件
  • 邀请有礼
  • 套餐&价格
  • 历史记录
应用&插件
Suppr Zotero 插件Zotero 插件浏览器插件Mac 客户端Windows 客户端微信小程序
定价
高级版会员购买积分包购买API积分包
服务
文献检索文档翻译深度研究API 文档MCP 服务
关于我们
关于 Suppr公司介绍联系我们用户协议隐私条款
关注我们

Suppr 超能文献

核心技术专利：CN118964589B侵权必究
粤ICP备2023148730 号-1Suppr @ 2026

文献检索

告别复杂PubMed语法，用中文像聊天一样搜索，搜遍4000万医学文献。AI智能推荐，让科研检索更轻松。

立即免费搜索

文件翻译

保留排版，准确专业，支持PDF/Word/PPT等文件格式，支持 12+语言互译。

免费翻译文档

深度研究

AI帮你快速写综述，25分钟生成高质量综述，智能提取关键信息，辅助科研写作。

立即免费体验

Improving Care for Patients with Sickle Cell Disease: a Qualitative Study of Hospitalized Sickle Cell Patients.

作者信息

Del Pino-Jones Amira, Bowden Kasey, Misky Gregory, Jones Christine D

机构信息

University of Colorado, Anschutz Medical Campus, Aurora, CO, USA.

Department of Medicine, Division of Hospital Medicine, Aurora, CO, USA.

出版信息

J Gen Intern Med. 2019 Dec;34(12):2693-2694. doi: 10.1007/s11606-019-05304-z.

DOI:10.1007/s11606-019-05304-z
PMID:31452034
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC6854201/
Abstract
摘要

相似文献

1
Improving Care for Patients with Sickle Cell Disease: a Qualitative Study of Hospitalized Sickle Cell Patients.改善镰状细胞病患者的护理：对住院镰状细胞病患者的定性研究
J Gen Intern Med. 2019 Dec;34(12):2693-2694. doi: 10.1007/s11606-019-05304-z.
2
Pediatric to Adult Care Transition: Perspectives of Young Adults With Sickle Cell Disease.儿科到成人护理的过渡：镰状细胞病青年的观点。
J Pediatr Psychol. 2017 Oct 1;42(9):1016-1027. doi: 10.1093/jpepsy/jsx088.
3
Transitioning Adolescents and Young Adults With Sickle Cell Disease From Pediatric to Adult Health Care: Provider Perspectives.镰状细胞病青少年和青年从儿科医疗向成人医疗过渡：医疗服务提供者的观点
J Pediatr Hematol Oncol. 2015 Nov;37(8):577-83. doi: 10.1097/MPH.0000000000000427.
4
"We don't wear it on our sleeve": Sickle cell disease and the (in)visible body in parts.“我们不会把它戴在袖子上”：部分人群中的镰状细胞病和（不可见的）身体。
Soc Sci Med. 2016 Jan;148:131-8. doi: 10.1016/j.socscimed.2015.11.033. Epub 2015 Nov 26.
5
Among emergency physicians, use of the term "Sickler" is associated with negative attitudes toward people with sickle cell disease.在急诊医生中，使用“Sickler”这个词与对镰状细胞病患者的负面态度有关。
Am J Hematol. 2013 Jun;88(6):532-3. doi: 10.1002/ajh.23441. Epub 2013 May 13.
6
Interpersonal Contexts of Communication Between Sickle Cell Disease Patients and Providers.
South Med J. 2016 Sep;109(9):573-5. doi: 10.14423/SMJ.0000000000000505.
7
Understanding and improving health education among first-time parents of infants with sickle cell anemia in Alabama: a mixed methods approach.了解并改善阿拉巴马州镰状细胞贫血症患儿初为人父母者的健康教育：一种混合方法研究。
J Pediatr Hematol Oncol. 2015 Jan;37(1):35-42. doi: 10.1097/MPH.0000000000000217.
8
Growing up with sickle cell disease: a pilot study of a transition program for adolescents with sickle cell disease.与镰状细胞病一同成长：一项针对镰状细胞病青少年过渡项目的试点研究。
J Pediatr Hematol Oncol. 2011 Jul;33(5):379-82. doi: 10.1097/MPH.0b013e318211bb2e.
9
Challenges and resilience in the lives of adults with sickle cell disease.患有镰状细胞病的成年人生活中的挑战与复原力
Soc Work Public Health. 2015;30(1):88-105. doi: 10.1080/19371918.2014.938396. Epub 2014 Nov 6.
10
Assessment of Patient and Caregiver Attitudes and Approaches to Decision-Making Regarding Bone Marrow Transplant for Sickle Cell Disease: A Qualitative Study.评估镰状细胞病患者及其照护者对骨髓移植决策的态度和方法：一项定性研究。
JAMA Netw Open. 2020 May 1;3(5):e206742. doi: 10.1001/jamanetworkopen.2020.6742.

本文引用的文献

1
Models of Care for High-Need, High-Cost Patients: An Evidence Synthesis.高需求、高成本患者的护理模式：证据综合
Issue Brief (Commonw Fund). 2015 Oct;31:1-19.
2
Voices of Adults Living with Sickle Cell Disease Pain.患有镰状细胞病疼痛的成年人的心声。
J Natl Black Nurses Assoc. 2012 Dec;23(2):16-23.
3
Outpatient pain predicts subsequent one-year acute health care utilization among adults with sickle cell disease.门诊疼痛可预测镰状细胞病成人患者随后一年的急性医疗保健利用率。
J Pain Symptom Manage. 2014 Jul;48(1):65-74. doi: 10.1016/j.jpainsymman.2013.08.020. Epub 2014 Mar 15.