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Comparing standard versus prosocial internet support groups for patients with breast cancer: a randomized controlled trial of the helper therapy principle.比较标准互联网支持小组与亲社会互联网支持小组对乳腺癌患者的影响:一项关于辅助治疗原则的随机对照试验
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Influence of psychological response on breast cancer survival: 10-year follow-up of a population-based cohort.心理反应对乳腺癌生存的影响:基于人群队列的10年随访
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职业及同伴主导的在线支持小组中乳腺癌女性所展现的斗志:对治疗结果的影响

Fighting spirit expressed by women with breast cancer in professional-and peer-led online support groups: effects on outcomes.

作者信息

Lieberman Morton A, Lepore Stephen

机构信息

University of California San Francisco, USA.

Temple University, Philadelphia, PA, USA.

出版信息

Madridge J Cancer Study Res. 2017;1(1):8-11. doi: 10.18689/mjcsr-1000102. Epub 2017 Oct 30.

DOI:10.18689/mjcsr-1000102
PMID:31453570
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC6709702/
Abstract

OBJECTIVE

Does fighting spirit reduce depression in women with breast cancer (BC)?

METHODS

Unlike previous studies using questionnaires, we assessed fighting spirit by analyzing interaction in BC support groups. Three online groups were studied: synchronous professionally led groups (Life Beyond Cancer), asynchronous professionallyled groups (Bosom Buddies) and asynchronous peer-led bulletin board groups (Peer Bulletin Boards). The samples were predominantly Caucasian, married, highly educated, and had early stage cancer. We used a content analysis program, DTSearch, to measure fighting words expressed in the groups. Linear regression was used to examine the relation between fighting words and follow-up depression, controlling for baseline depression and total word count. We also compared samples on the number of fight words expressed.

RESULTS

We found that viewing their cancer as a fight or battle would result in lowered depression was disconfirmed in all samples. The peer groups had twice as many fight words compared to professionally led groups.

CONCLUSION

Previous studies as well as the current one strongly support the null hypothesis. Our finding based on a behavioral measure of fighting spirit does add to previous studies results. Unfortunately the common lay perspective for cancer sufferers is that not having fighting spirit would mean a psychological incapacity. The message is that "brave and good people defeat cancer and that cowardly and undeserving people allow it to kill them". This view can create guilt, self flagellation and stress in woman already facing a difficult disease.

摘要

目的

斗志能否减轻乳腺癌(BC)女性的抑郁情绪?

方法

与以往使用问卷调查的研究不同,我们通过分析乳腺癌支持小组中的互动来评估斗志。研究了三个在线小组:同步专业指导小组(“癌症之外的生活”)、异步专业指导小组(“知心好友”)和异步同伴主导的公告栏小组(“同伴公告栏”)。样本主要为白人、已婚、受过高等教育且患有早期癌症。我们使用一个内容分析程序DTSearch来衡量小组中表达的斗志话语。采用线性回归来检验斗志话语与随访期抑郁之间的关系,同时控制基线抑郁和总词数。我们还比较了各样本中表达的斗志话语数量。

结果

我们发现在所有样本中,将癌症视为一场战斗会降低抑郁情绪这一观点未得到证实。同伴小组表达的斗志话语数量是专业指导小组的两倍。

结论

以往的研究以及本研究都有力地支持了零假设。我们基于斗志行为测量的发现确实补充了以往的研究结果。不幸的是,癌症患者普遍的外行观点是,没有斗志意味着心理上的无能。传达的信息是“勇敢善良的人战胜癌症,懦弱不值得的人任由癌症夺去生命”。这种观点会给已经面临重病的女性带来内疚、自我鞭笞和压力。