Lane Blake, Hanke Samuel P, Giambra Barbara, Madsen Nicolas L, Staveski Sandra L
Live Well Collaborative, Cincinnati, OH, USA.
College of Design, Architecture, Art & Planning, University of Cincinnati, Cincinnati, OH, USA.
Cardiol Young. 2019 Oct;29(10):1230-1235. doi: 10.1017/S1047951119001318. Epub 2019 Aug 30.
To examine the strengths and opportunities for improvement of current home care education practices to inform the development of the Home Care for Heart Health intervention, and to develop a web-based intervention for parents and clinicians with complimentary print materials that could provide the right education at the right time to foster a safer transition from hospital to home.
An inter-professional focus group of parents, clinicians, and designers was formed to co-create a home care education intervention for parents of children with congenital heart disease (CHD) and their care team. We used the Integrated New Product Development process model created by Jonathon Cagan and Craig Vogel at Carnegie Mellon University to develop the intervention. This process model is a way of thinking that combines horizontal and inter-disciplinary teams, stakeholder-centric focus, and a system of qualitative discovery and development evolving towards quantitative methods of refinement.
Our team developed the Home Care for Heart Health intervention. The evidenced-based intervention includes a quick reference guide for parents of children with CHD, an accompanying app, family-friendly pathways, and clinician education.
Using an inter-professional approach, our team of clinicians, parents, and design experts were able to co-create a clinician-parent home care education intervention with broad application and lifelong relevance to the Congenital Heart Disease Community.
Our intervention has the potential to be used as a model for other home care education interventions for parents of children with chronic illnesses.
审视当前家庭护理教育实践的优势与改进机会，为心脏健康家庭护理干预措施的制定提供参考，并为家长和临床医生开发一种基于网络的干预措施及配套印刷材料，以便在恰当时间提供恰当教育，促进从医院到家庭的更安全过渡。
组建了一个由家长、临床医生和设计师组成的跨专业焦点小组，共同为先天性心脏病（CHD）患儿的家长及其护理团队创建家庭护理教育干预措施。我们采用了由卡内基梅隆大学的乔纳森·卡根和克雷格·沃格尔创建的集成新产品开发流程模型来开发该干预措施。这个流程模型是一种思维方式，它结合了横向和跨学科团队、以利益相关者为中心的关注点，以及一个从定性发现和开发逐步演变为定量细化方法的系统。
我们的团队开发了心脏健康家庭护理干预措施。该基于证据的干预措施包括一份针对CHD患儿家长的快速参考指南、一款配套应用程序、适合家庭的路径以及临床医生教育。
通过采用跨专业方法，我们由临床医生、家长和设计专家组成的团队能够共同创建一种临床医生 - 家长家庭护理教育干预措施，对先天性心脏病群体具有广泛适用性和长期相关性。
我们的干预措施有可能被用作其他针对慢性病患儿家长的家庭护理教育干预措施的典范。
