Mannarino Candace N, Michelson Kelly, Jackson Lindsay, Paquette Erin, McBride Mary E
Division of Paediatric Cardiology, Northwestern University Feinberg School of Medicine, Ann & Robert H. Lurie Children's Hospital of Chicago, Chicago, IL, USA.
Division of Paediatric Critical Care Medicine, Northwestern University Feinberg School of Medicine, Ann & Robert H. Lurie Children's Hospital of Chicago, Chicago, IL, USA.
Cardiol Young. 2020 Dec;30(12):1788-1796. doi: 10.1017/S1047951120002759. Epub 2020 Sep 22.
Children with congenital heart disease (CHD) have complex unique post-operative care needs. Limited data assess parents' hospital discharge preparedness and education quality following cardiac surgery. The goals were to identify knowledge gaps in discharge preparedness after congenital heart surgery and to assess the acceptability of an educational mobile application to improve discharge preparedness.
Telephonic interviews with parents of children with two-ventricle physiology who underwent cardiac surgery 5-7 days post-discharge and in-person interviews with clinicians were conducted. We collected parent and clinician demographics, parent health literacy information and patient clinical data. We analysed interview transcripts using summative content analysis.
We interviewed 26 parents and 6 clinicians. Twenty-two of the 26 (85%) parents felt ready for discharge; 4 of the 6 (67%) clinicians did not feel most parents were ready for discharge. Fifteen of the 26 parents (58%) reported receiving the majority of discharge teaching on the day of discharge. Eight parents did not feel like all of their questions were answered. Most parents (14/26, 54%) preferred visual educational learning aids and could accurately describe important aspects of care. Most parents (23/26, 88%) and all 6 clinicians felt a mobile application for post-operative care education would be helpful.
Most parents received education on the day of discharge and could describe the information they received prior to discharge, although there were some preparedness gaps identified after discharge. Clinicians and parents varied in their perceptions of the readiness for discharge. Most responses suggest that a mobile application for discharge education may be helpful for transition to home.
先天性心脏病（CHD）患儿术后护理需求复杂且独特。关于心脏手术后家长出院准备情况及教育质量的数据有限。本研究旨在识别先天性心脏手术后出院准备方面的知识差距，并评估一款教育移动应用程序在改善出院准备方面的可接受性。
对双心室生理患儿的家长进行出院后5 - 7天的电话访谈，并对临床医生进行面对面访谈。我们收集了家长和临床医生的人口统计学信息、家长健康素养信息以及患者临床数据。我们采用总结性内容分析法对访谈记录进行分析。
我们访谈了26位家长和6位临床医生。26位家长中有22位（85%）感觉已做好出院准备；6位临床医生中有4位（67%）认为大多数家长未做好出院准备。26位家长中有15位（58%）报告在出院当天接受了大部分出院指导。8位家长觉得他们的所有问题并未都得到解答。大多数家长（14/26，54%）更喜欢视觉教育学习辅助工具，并且能够准确描述护理的重要方面。大多数家长（23/26，88%）和所有6位临床医生都认为一款用于术后护理教育的移动应用程序会有所帮助。
大多数家长在出院当天接受了教育，并且能够描述出院前收到的信息，尽管出院后发现存在一些准备方面的差距。临床医生和家长对出院准备情况的看法存在差异。大多数反馈表明，一款用于出院教育的移动应用程序可能有助于患儿顺利过渡到家庭护理。
