Naile Alankaya, PhD RN, is Assistant Professor, Department of Nursing, Canakkale Onsekiz Mart University Faculty of Health Sciences, Canakkale, Turkey. Aylin Özakgül, PhD RN, is Assistant Professor, Florence Nightingale Faculty of Nursing, Department of Fundamentals of Nursing, Istanbul University-Cerrahpasa, Istanbul, Turkey. Alper Kaya, MD, is Board Member of the ALS/MND Association of Turkey, Izmir, Turkey. Aynur Dik, RN, is President of the Home Care Association of Turkey, Istanbul, Turkey.
J Neurosci Nurs. 2019 Oct;51(5):253-258. doi: 10.1097/JNN.0000000000000466.
The aim of this study was to adapt the Amyotrophic Lateral Sclerosis Assessment Questionnaire (ALSAQ), developed for the evaluation of quality of life in amyotrophic lateral sclerosis (ALS) patients, into the Turkish society.
This methodological study was conducted in 92 ALS patients registered in 2 chapters (Istanbul and Izmir) of Turkish ALS-Motor Neuron Diseases Association. The expert opinion and forward-backward translation methods were applied for the linguistic validity of the ALSAQ (long and short versions: ALSAQ-40 and ALSAQ-5, respectively).
In the analysis of internal consistency, the Cronbach's α reliability coefficient was .96 for the total scale, whereas it was between .88 and .98 for the 5 dimensions. The dimensions of the long form were correlated with the items of the short form.
The Turkish versions of the ALSAQ short and long forms are valid and reliable tools to be used in the assessment of the quality of life in ALS patients.
本研究旨在将用于评估肌萎缩侧索硬化症（ALS）患者生活质量的肌萎缩侧索硬化症评估问卷（ALSAQ）改编为土耳其社会使用。
该方法学研究在土耳其肌萎缩侧索硬化症-运动神经元疾病协会的两个分会（伊斯坦布尔和伊兹密尔）登记的 92 名 ALS 患者中进行。采用专家意见和前后翻译法对 ALSAQ（长、短两个版本：ALSAQ-40 和 ALSAQ-5）的语言效度进行评估。
在内部一致性分析中，总量表的 Cronbach's α 信度系数为.96，而 5 个维度的信度系数在.88 至.98 之间。长式的各维度与短式的各项均呈相关性。
ALSAQ 短、长两个版本的土耳其语版本均为有效且可靠的工具，可用于评估 ALS 患者的生活质量。
