澳大利亚自闭症谱系障碍儿童的护理质量。

The Quality of Care for Australian Children with Autism Spectrum Disorders.

机构信息

Centre for Healthcare Resilience and Implementation Science, Australian Institute of Health Innovation, Macquarie University, Level 6, 75 Talavera Rd, North Ryde, NSW, 2109, Australia.

Australian Centre for Precision Health, School of Health Sciences, University of South Australia Cancer Research Institute, University of South Australia, Level 8, North Terrace, GPO Box 2471, Adelaide, SA, 5001, Australia.

出版信息

J Autism Dev Disord. 2019 Dec;49(12):4919-4928. doi: 10.1007/s10803-019-04195-7.

DOI:10.1007/s10803-019-04195-7

PMID:31473948

Abstract

Knowledge about the quality of care delivered to children with autism spectrum disorders (ASD) in relation to that recommended by clinical practice guidelines (CPGs) is limited. ASD care quality indicators were developed from CPGs and validated by experts, then used to assess the quality of care delivered by general practitioners (GPs) and pediatricians in Australia. Data were retrospectively collected from the medical records of 228 children (≤ 15 years) with ASD for 2012-2013. Overall quality of care was high, but with considerable variation among indicators, and between GPs and pediatricians-e.g., GPs were less likely to complete the assessment care bundle (61%; 95% CI 21-92). Findings highlight potential areas for improvement in the need for standardized criteria for diagnosis.

摘要

关于自闭症谱系障碍（ASD）儿童的护理质量与临床实践指南（CPGs）建议之间的关系，人们知之甚少。ASD 护理质量指标是根据 CPG 制定并由专家验证的，然后用于评估澳大利亚全科医生（GP）和儿科医生提供的护理质量。数据是从 2012-2013 年 228 名（≤15 岁）ASD 儿童的病历中回顾性收集的。整体护理质量较高，但指标之间存在较大差异，GP 和儿科医生之间也存在差异，例如，GP 更不可能完成评估护理包（61%；95%CI 21-92）。研究结果突出了在需要标准化诊断标准方面需要改进的潜在领域。