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医疗保健提供者的自闭症体验:范围综述。

Healthcare Providers' Experiences with Autism: A Scoping Review.

机构信息

School of Social Work, University of British Columbia, 2080 West Mall, Vancouver, BC, V6T 1Z2, Canada.

The Redpath Centre, 410-943 West Broadway, Vancouver, BC, Canada.

出版信息

J Autism Dev Disord. 2019 Jun;49(6):2374-2388. doi: 10.1007/s10803-019-03912-6.

DOI:10.1007/s10803-019-03912-6
PMID:30758692
Abstract

Gaps in research knowledge exist regarding patient-provider interactions with individuals with autism in healthcare settings. To address this, a scoping review was conducted focusing on the experiences of healthcare professionals working with individuals with autism. A systematic search and screen of the literature resulted in 27 relevant studies. Six key themes were found across these 27 studies including (1) complexity beyond usual role, (2) limited knowledge and resources, (3) training/prior experience, (4) communication and collaboration, (5) need for information and training, and (6) need for care coordination and systemic changes. The results of this review have implications for future research and practice and should be considered when reflecting on opportunities to enhance research and service provision with individuals with autism.

摘要

关于医疗保健环境中患者与自闭症患者之间的医患互动,研究知识存在差距。为了解决这个问题,进行了一项范围综述,重点关注与自闭症患者一起工作的医疗保健专业人员的经验。对文献进行了系统的搜索和筛选,结果发现了 27 项相关研究。这 27 项研究中有 6 个关键主题,包括:(1)超出常规角色的复杂性;(2)知识和资源有限;(3)培训/先前经验;(4)沟通与协作;(5)信息和培训需求;(6)需要协调护理和系统变革。本综述的结果对未来的研究和实践具有启示意义,在反思增强与自闭症患者的研究和服务提供的机会时应考虑这些结果。

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本文引用的文献

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Medical care experiences of children with autism and their parents: A scoping review.自闭症儿童及其父母的医疗护理经历:一项范围综述。
Child Care Health Dev. 2018 Nov;44(6):807-817. doi: 10.1111/cch.12611. Epub 2018 Aug 22.
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Patient-provider relationships and health outcomes among hepatopancreatobiliary patients.肝胰胆疾病患者的医患关系与健康结局
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Development and Evaluation of an Educational Initiative to Improve Hospital Personnel Preparedness to Care for Children with Autism Spectrum Disorder.
欧洲自闭症患者获得服务的情况。
Mol Autism. 2025 Jun 14;16(1):35. doi: 10.1186/s13229-025-00664-2.
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Menstruation and Autism: a qualitative systematic review.月经与自闭症:一项定性系统综述。
Autism Adulthood. 2025 Apr 17. doi: 10.1089/aut.2024.0307.
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Development of PREPARE for Autistic Adults: An Adult Autism Training for Resident Physicians Designed with Autistic Adults and Family Members.为成年自闭症患者制定准备计划:一项由成年自闭症患者及其家庭成员参与设计的针对住院医师的成人自闭症培训。
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The Meaning of Autism Friendly in Hospital Settings: A Scoping Review of the Autism Community's Perspectives.医院环境中“自闭症友好”的含义:自闭症群体观点的范围综述
J Autism Dev Disord. 2025 Mar 19. doi: 10.1007/s10803-025-06781-4.
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Challenges hindering family involvement in the hospital nursing care of a child with autism.阻碍家庭参与自闭症儿童住院护理的挑战。
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Parental Perceptions of Access to and Utilization of Services for Autistic Children in African American Families: An Exploratory Study.非裔美国家庭中父母对自闭症儿童服务获取与利用的认知:一项探索性研究
J Racial Ethn Health Disparities. 2025 Jan 28. doi: 10.1007/s40615-025-02283-2.
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Autistic and transgender/gender diverse people's experiences of health and healthcare.自闭症患者以及跨性别/性别多元者的健康及医疗保健经历。
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Health Concerns and Health Service Utilization in a Population Cohort of Young Adults with Autism Spectrum Disorder.自闭症谱系障碍青年人群的健康问题和卫生服务利用情况。
J Autism Dev Disord. 2018 Jan;48(1):36-44. doi: 10.1007/s10803-017-3292-0.
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Management of Mental Health Crises Among Youths With and Without ASD: A National Survey of Child Psychiatrists.青少年精神健康危机的管理:自闭症谱系障碍与非自闭症谱系障碍青少年的全国性调查。
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Identifying the clinical needs and patterns of health service use of adolescent girls and women with autism spectrum disorder.识别患有自闭症谱系障碍的青少年女孩和妇女的临床需求和卫生服务利用模式。
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