Sarimski Klaus
Pädagogische Hochschule Heidelberg Keplerstr. 87 69120 Heidelberg Deutschland Pädagogische Hochschule Heidelberg.
Prax Kinderpsychol Kinderpsychiatr. 2019 Sep;68(6):525-539. doi: 10.13109/prkk.2019.68.6.525.
Parents of 42 children with Down syndrome (mean age 9 years) report on their child's quality of life (physical, emotional and social domain). The KINDL-R was used as a proxy-report measure. Quality of life correlated negatively with behavioral symptoms (SDQ), but did not vary between children in mainstreamed or special schools. Regression analysis identified the child's behavioral symptoms and parental stress - assessed when the children had reached the age of five - as significant predictors of quality of life assessed four years later.
42名唐氏综合征患儿（平均年龄9岁）的家长报告了孩子的生活质量（身体、情感和社会领域）。使用儿童生活质量量表简版（KINDL-R）作为代理报告测量工具。生活质量与行为症状（优势与困难问卷，SDQ）呈负相关，但在主流学校或特殊学校的儿童之间没有差异。回归分析确定，孩子的行为症状和父母压力（在孩子5岁时评估）是4年后评估的生活质量的重要预测因素。
