Stein Duker Leah I, Sadie Kim Hee Kyung, Pomponio Amber, Mosqueda Laura, Pfeiffer Beth
Leah I. Stein Duker, PhD, OTR/L, is Assistant Professor of Research, Chan Division of Occupational Science and Occupational Therapy, Ostrow School of Dentistry, University of Southern California, Los Angeles;
Hee Kyung Sadie Kim, OTD, OTR/L, is Occupational Therapist. At the time of the study, she was Clinical Doctoral Resident, Chan Division of Occupational Science and Occupational Therapy, Ostrow School of Dentistry, University of Southern California, Los Angeles.
Am J Occup Ther. 2019 Sep/Oct;73(5):7305185030p1-7305185030p11. doi: 10.5014/ajot.2019.037226.
Our objective was to identify perceived barriers and strategies to improve primary care encounters, as reported by adults with autism spectrum disorder (ASD), caregivers of adults with ASD, and primary care providers (PCPs) treating adults with ASD.
As part of a larger mixed-methods design, adults with ASD, caregivers, and PCPs (N = 78) in Los Angeles and Philadelphia completed surveys examining barriers to care and strategies to improve care.
Multiple barriers to care were reported by adults with ASD and caregivers, including communication and sensory challenges. Adults with ASD and caregivers reported minimal use of strategies during primary care visits but indicated that those used were helpful during care. Expert PCPs reported using strategies more frequently than novice PCPs. All respondent groups endorsed that strategies had the potential to improve care in the future for adults with ASD.
Opportunities exist for occupational therapy collaboration in primary health care and primary care education to improve care for adults with ASD.
我们的目标是确定自闭症谱系障碍(ASD)成人患者、ASD 成人患者的照料者以及治疗 ASD 成人患者的初级保健提供者(PCP)所报告的、影响初级保健就诊体验的感知障碍和改善策略。
作为一项更大规模混合方法设计的一部分,洛杉矶和费城的 ASD 成人患者、照料者以及初级保健提供者(N = 78)完成了关于护理障碍和改善护理策略的调查。
ASD 成人患者和照料者报告了多种护理障碍,包括沟通和感官方面的挑战。ASD 成人患者和照料者表示在初级保健就诊期间很少使用策略,但指出所使用的策略在护理过程中是有帮助的。专家级初级保健提供者报告使用策略的频率高于新手初级保健提供者。所有受访者群体都认可这些策略有可能在未来改善 ASD 成人患者的护理。
在初级卫生保健和初级保健教育中,职业治疗合作存在改善 ASD 成人患者护理的机会。