Rieger Agnes, Gaines Averi, Barnett Ian, Baldassano Claudia Frances, Connolly Gibbons Mary Beth, Crits-Christoph Paul
University of Pennsylvania, Philadelphia, PA, United States.
JMIR Form Res. 2019 Aug 29;3(3):e14329. doi: 10.2196/14329.
Psychiatry research has begun to leverage data collected from patients' social media and smartphone use. However, information regarding the feasibility of utilizing such data in an outpatient setting and the acceptability of such data in research and practice is limited.
This study aimed at understanding the outpatients' willingness to have information from their social media posts and their smartphones used for clinical or research purposes.
In this survey study, we surveyed patients (N=238) in an outpatient clinic waiting room. Willingness to share social media and passive smartphone data was summarized for the sample as a whole and broken down by sex, age, and race.
Most patients who had a social media account and who were receiving talk therapy treatment (74.4%, 99/133) indicated that they would be willing to share their social media posts with their therapists. The percentage of patients willing to share passive smartphone data with researchers varied from 40.8% (82/201) to 60.7% (122/201) depending on the parameter, with sleep duration being the parameter with the highest percentage of patients willing to share. A total of 30.4% of patients indicated that media stories of social media privacy breaches made them more hesitant about sharing passive smartphone data with researchers. Sex and race were associated with willingness to share smartphone data, with men and whites being the most willing to share.
Our results indicate that most patients in a psychiatric outpatient setting would share social media and passive smartphone data and that further research elucidating patterns of willingness to share passive data is needed.
精神病学研究已开始利用从患者社交媒体和智能手机使用情况收集的数据。然而，关于在门诊环境中使用此类数据的可行性以及此类数据在研究和实践中的可接受性的信息有限。
本研究旨在了解门诊患者对于让临床医生或研究人员使用其社交媒体帖子和智能手机中的信息的意愿。
在这项调查研究中，我们对门诊候诊室中的患者（N = 238）进行了调查。汇总了整个样本分享社交媒体和被动智能手机数据的意愿，并按性别、年龄和种族进行了细分。
大多数拥有社交媒体账户且正在接受谈话治疗的患者（74.4%，99/133）表示愿意与治疗师分享他们的社交媒体帖子。根据参数不同，愿意与研究人员分享被动智能手机数据的患者比例从40.8%（82/201）到60.7%（122/201）不等，其中睡眠时间是患者愿意分享比例最高的参数。共有30.4%的患者表示，社交媒体隐私泄露的媒体报道让他们在与研究人员分享被动智能手机数据时更加犹豫。性别和种族与分享智能手机数据的意愿相关，男性和白人最愿意分享。
我们的结果表明，大多数精神科门诊患者愿意分享社交媒体和被动智能手机数据，并且需要进一步研究以阐明分享被动数据的意愿模式。
