Hospital Infantil João Paulo II, Unidade CUIDAR - Cuidado Paliativo e Atenção Domiciliar, Belo Horizonte, MG, Brazil.
Hospital Infantil João Paulo II, UTI Pediátrica, Belo Horizonte, MG, Brazil.
J Pediatr (Rio J). 2020 Sep-Oct;96(5):652-659. doi: 10.1016/j.jped.2019.07.005. Epub 2019 Sep 4.
To present the characteristics of pediatric patients with chronic and irreversible diseases submitted to palliative extubation.
This is a descriptive analysis of a series of patients admitted to a public pediatric hospital, with chronic and irreversible diseases, permanently dependent on ventilatory support, who underwent palliative extubation between April 2014 and May 2019. The following information was collected from the medical records: demographic data, diagnosis, duration and type of mechanical ventilation; date, time, and place of palliative extubation; medications used; symptoms observed; and hospital outcome.
A total of 19 patients with a mean age of 2.2 years were submitted to palliative extubation. 68.4% of extubations were performed in the ICU; 11 patients (57.9%) died in the hospital. The time between mechanical ventilation withdrawal and in-hospital death ranged from 15minutes to five days. Thirteen patients used an orotracheal tube and the others used tracheostomy. The main symptoms were dyspnea and pain, and the main drugs used to control symptoms were opioids and benzodiazepines.
It was not possible to identify predictors of in-hospital death after ventilatory support withdrawal. Palliative extubation requires specialized care, with the presence and availability of a multidisciplinary team with adequate training in symptom control and palliative care.
介绍接受姑息性拔管的慢性和不可逆疾病儿科患者的特征。
这是对 2014 年 4 月至 2019 年 5 月期间在一家公立儿科医院接受姑息性拔管的慢性和不可逆疾病、永久性依赖通气支持的患者进行的系列病例描述性分析。从病历中收集了以下信息:人口统计学数据、诊断、机械通气的持续时间和类型;姑息性拔管的日期、时间和地点;使用的药物;观察到的症状;以及住院结果。
共有 19 名平均年龄为 2.2 岁的患者接受了姑息性拔管。68.4%的拔管在 ICU 进行;11 名患者(57.9%)在医院死亡。机械通气撤机与院内死亡之间的时间范围为 15 分钟至 5 天。13 名患者使用了经口气管插管,其余患者使用了气管切开术。主要症状是呼吸困难和疼痛,用于控制症状的主要药物是阿片类药物和苯二氮䓬类药物。
无法确定通气支持撤机后院内死亡的预测因素。姑息性拔管需要专业护理,需要有一个多学科团队,该团队具有足够的症状控制和姑息治疗培训。