Department of Oncology, Skåne University Hospital, Lund, Sweden.
Faculty of Health and Life Sciences, Linnaeus University, Kalmar/Växjö, Sweden.
Palliat Support Care. 2020 Feb;18(1):24-32. doi: 10.1017/S1478951519000592.
For patients' entire families, it can be challenging to live with cancer during the palliative stage. However, a sense of coherence buffers stress and could help health professionals identify families that require support. Therefore, the short version of the Family Sense of Coherence Scale (FSOC-S) was translated, culturally adapted, and validated in a Swedish sample.
Translation and cross-cultural adaptation of the FSOC-S into Swedish was conducted in accordance with the World Health Organization's Process for Translation and Adaptation of Research Instruments guidelines. Participants were recruited from two oncology clinics and two palliative centers in Sweden.
Content validity was supported by experts (n = 7), persons with cancer (n = 179), and family members (n = 165). Homogeneity among items was satisfactory for persons with cancer and family members (item-total correlations were 0.45‒0.70 and 0.55‒0.72, respectively) as well as internal consistency (ordinal alpha = 0.91 and 0.91, respectively). Factor analyses supported unidimensionality. FSOC-S correlated (rs > 0.3) with hope, anxiety, and symptoms of depression, which supported convergent validity. The test-retest reliability for items ranged between fair and good (kw = 0.37‒0.61).
The FSOC-S has satisfactory measurement properties to assess family sense of coherence in persons with cancer and their family members. FSOC-S could be used to identify family members who experience low levels of perceived family sense of coherence which provides health care professionals with insight into families' needs and ability to live with cancer in the palliative stage.
对于癌症患者的整个家庭来说,在姑息阶段与癌症患者共同生活可能具有挑战性。然而,一致性感可以缓冲压力,并帮助卫生专业人员确定需要支持的家庭。因此,我们将家庭一致性感量表(FSOC-S)的简短版本翻译成瑞典语,并对其进行了文化适应性和验证。
根据世界卫生组织研究工具翻译和适应指南,对 FSOC-S 进行了翻译和跨文化适应性调整。参与者来自瑞典的两家肿瘤诊所和两家姑息治疗中心。
内容有效性得到了专家(n=7)、癌症患者(n=179)和家庭成员(n=165)的支持。项目间的同质性在癌症患者和家庭成员中均令人满意(项目总分相关性分别为 0.45-0.70 和 0.55-0.72),内部一致性也令人满意(有序 alpha 分别为 0.91 和 0.91)。因子分析支持单维性。FSOC-S 与希望、焦虑和抑郁症状呈正相关(rs>0.3),支持了收敛效度。项目的重测信度在 0.37-0.61 之间。
FSOC-S 具有良好的测量特性,可用于评估癌症患者及其家庭成员的家庭一致性感。FSOC-S 可用于识别感知家庭一致性感较低的家庭成员,这为卫生保健专业人员提供了对家庭需求的深入了解,并了解家庭在姑息阶段应对癌症的能力。