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痴呆症患者及其家庭护理人员如何看待特定于痴呆症的生活质量状态?一项探索性的“大声思考”研究。

How do people with dementia and family carers value dementia-specific quality of life states? An explorative "Think Aloud" study.

作者信息

Ratcliffe Julie, Hutchinson Claire, Milte Rachel, Nguyen Kim-Huong, Welch Alyssa, Caporale Tessa, Corlis Megan, Comans Tracy

机构信息

Health and Social Care Economics Group, College of Nursing and Health Sciences, Flinders University, Adelaide, South Australia, Australia.

Centre for Health Services Research, The University of Queensland, Brisbane, Queensland, Australia.

出版信息

Australas J Ageing. 2019 Sep;38 Suppl 2:75-82. doi: 10.1111/ajag.12646.

DOI:10.1111/ajag.12646
PMID:31496068
Abstract

OBJECTIVE

To investigate the decision-making processes applied by people with dementia and family carers participating in using health economic approaches to value dementia-specific quality of life states.

METHODS

People with dementia (n = 13) and family carers (n = 14) participated in valuing quality of life states using two health economic approaches: Discrete Choice Experiment (DCE) and Best Worst Scaling (BWS). Participants were encouraged to explain their reasoning using a "Think Aloud" approach.

RESULTS

People with dementia and family carers adopted a range of decision-making strategies including "anchoring" the presented states against current quality of life, or simplifying the decision-making by focusing on the sub-set of attributes deemed most important. Overall, there was strong evidence of task engagement for BWS and DCE.

CONCLUSIONS

Health economic valuation approaches can be successfully applied with people with dementia and family carers. These data can inform the assessment of benefits from their perspectives for incorporation within economic evaluation.

摘要

目的

调查患有痴呆症的患者及其家庭护理人员在运用健康经济方法评估特定痴呆症生活质量状态时所采用的决策过程。

方法

患有痴呆症的患者(n = 13)和家庭护理人员(n = 14)运用两种健康经济方法参与生活质量状态评估:离散选择实验(DCE)和最佳最差标度法(BWS)。鼓励参与者采用“出声思考”方法解释其推理过程。

结果

患有痴呆症的患者及其家庭护理人员采用了一系列决策策略,包括将所呈现的状态与当前生活质量进行“锚定”,或通过关注被认为最重要的属性子集来简化决策。总体而言,有充分证据表明参与者参与了BWS和DCE任务。

结论

健康经济评估方法可成功应用于患有痴呆症的患者及其家庭护理人员。这些数据可为从他们的角度评估效益以纳入经济评估提供参考。

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