Region Halland, Halmstad Hospital, Halmstad, Sweden.
School of Health and Welfare, Halmstad University, Halmstad, Sweden.
J Clin Nurs. 2020 Jan;29(1-2):107-118. doi: 10.1111/jocn.15063. Epub 2019 Oct 10.
To develop and evaluate the psychometric properties of a self-report instrument measuring 6- to 12-year-old children's own experiences of participation in health care.
Validated measures to evaluate children's participation in health care can play a critical role in strategic work towards supporting children's participation at an individual level and in working towards quality improvements at an organisational level. There are, however, no available instruments to achieve this.
An instrument development design was used, together with the TRIPOD checklist. Item construction was based on research about children's perspectives on participation in health care and Shier's model for participation. The face and content validity was evaluated by 14 healthy children, 9 paediatric nurses and 8 children with different diseases. The construct validity, internal consistency and stability reliability were evaluated based on data from 138 children visiting a paediatric clinic.
The testing of the face and content validity resulted in an instrument with child-friendly language, additional instructions and visual attractive presentation. The principle component analysis resulted in the four-factor solution: "To be included," "To trust professionals," "To take control," and "To understand information." Internal consistency and intraclass correlation coefficients were acceptable.
We conclude that the child participation in health care (ChiPaC) instrument has adequate reliability and validity when used to evaluate children's participation in health care. The involvement of children in the development of ChiPaC resulted in a brief, colourful and user-friendly instrument for use in paediatric health care.
This new questionnaire, ChiPaC, is adapted for children between 6-12 years measuring participation in health care from a child perspective. ChiPaC can be used in the practical work of supporting individual children's participation in health care as well as in the strategical work towards quality improvements on an organisational level.
开发和评估一种自我报告工具，用于测量 6 至 12 岁儿童参与医疗保健的自身经验。
验证的评估儿童参与医疗保健的工具可以在支持儿童在个人层面参与和在组织层面追求质量改进方面的战略工作中发挥关键作用。然而，目前还没有可用的工具来实现这一目标。
采用仪器开发设计，并结合 TRIPOD 清单。项目构建基于儿童对参与医疗保健的看法和 Shier 的参与模式的研究。通过 14 名健康儿童、9 名儿科护士和 8 名患有不同疾病的儿童对其进行了表面和内容效度评估。根据来自 138 名儿科诊所就诊儿童的数据评估了其结构有效性、内部一致性和稳定性可靠性。
表面和内容有效性的测试结果是一种具有儿童友好语言、附加说明和视觉吸引力呈现的工具。主成分分析产生了四因素解决方案：“被包括”、“信任专业人员”、“掌控”和“理解信息”。内部一致性和组内相关系数是可以接受的。
我们得出结论，当用于评估儿童参与医疗保健时，儿童参与医疗保健（ChiPaC）工具具有足够的信度和效度。儿童参与 ChiPaC 的开发过程产生了一种简洁、丰富多彩且易于使用的儿科医疗保健工具。
这个新的问卷 ChiPaC 适用于 6-12 岁的儿童，从儿童的角度衡量他们在医疗保健中的参与度。ChiPaC 可以用于支持个别儿童参与医疗保健的实际工作，以及在组织层面追求质量改进的战略工作。
