Faculty of Medicine and Health, Örebro University, Örebro, Sweden.
Department of Paediatric Medicine, County Hospital Karlstad, Karlstad, Sweden.
Health Expect. 2022 Feb;25(1):384-393. doi: 10.1111/hex.13396. Epub 2021 Dec 2.
In January 2020, the United Nations Convention on the Rights of the Child was incorporated into Swedish law. According to Swedish regulations, patients are to be given the opportunity to participate in quality improvement. Sometimes, the patients are children who have the right to be heard on matters concerning them, such as their experience of a hospital visit.
This study aimed to describe how Swedish paediatric departments facilitate children's voices on their healthcare experiences and how their perspectives are taken into account in quality improvement work.
This study has a descriptive cross-sectional design. Data were collected using a study-specific survey sent by e-mail to all the heads of the paediatric departments in Sweden, with both inpatient and outpatient care. The response rate was 74% (28 of 38 departments).
The results demonstrated a variation in questionnaires used and to whom they were targeted; less than half of the participating departments reported having had questionnaires aimed at children. The results also indicated a major variation in other working methods used to allow children to voice their experiences in Swedish paediatric departments. The results indicate that the national co-ordination in facilitating the children's rights to be heard on their experiences in healthcare organisations can be improved.
Further research is required to ascertain which method is the most practically effective in paediatric departments, in what way children prefer to be heard regarding their experience of and perspectives on healthcare, and what questions need to be asked. A validated national patient-reported experience measure developed with and aimed at children could provide them with equal opportunities to voice their experiences in healthcare, regardless of their diagnoses or which paediatric department they visit.
2020 年 1 月，《联合国儿童权利公约》被纳入瑞典法律。根据瑞典的规定，患者有机会参与质量改进。有时，患者是有权就与其相关的事项发表意见的儿童，例如他们对医院就诊的体验。
本研究旨在描述瑞典儿科部门如何促进儿童对其医疗体验发表意见，以及如何在质量改进工作中考虑他们的观点。
本研究采用描述性的横断面设计。使用特定于研究的问卷通过电子邮件发送给瑞典所有儿科部门的负责人，包括住院和门诊护理。回复率为 74%（28 个部门中的 28 个）。
结果显示，所使用的问卷和目标人群存在差异；参与的部门中不到一半报告说有针对儿童的问卷。结果还表明，在允许儿童在瑞典儿科部门表达其体验的其他工作方法上存在很大差异。结果表明，可以改进在医疗保健组织中促进儿童在其体验方面发表意见的权利的国家协调。
需要进一步研究确定在儿科部门哪种方法最有效，儿童希望以何种方式就其对医疗保健的体验和观点发表意见，以及需要提出哪些问题。与儿童一起制定并针对儿童的经过验证的全国患者报告体验衡量标准，可以为他们提供在医疗保健中表达体验的平等机会，而不受其诊断或他们就诊的儿科部门的影响。
