Intensive Care Unit and Department of Pediatric Surgery (JLF, DT, MvD), Erasmus University Medical Center - Sophia Children's Hospital, Rotterdam, the Netherlands.
Department of Internal Medicine, Erasmus University Medical Center, Rotterdam, the Netherlands.
J Health Care Chaplain. 2020 Jul-Sep;26(3):117-130. doi: 10.1080/08854726.2019.1670538. Epub 2019 Oct 4.
Spiritual care is recognized as a relevant dimension of health care. In the context of pediatric palliative end-of-life care, spirituality entails more than adhering to a spiritual worldview or religion. Interviews with parents whose critically ill child died in the pediatric intensive care unit revealed features of a spirituality that is fragmentary and full of contradictions. This type of spirituality, which we refer to as fragile, speaks of parents' connectedness with the deceased child and the hope of some kind of reuniting after one's own death. Acknowledging that fragments of spirituality can be part of parents' experiences in their child's end-of-life stage can be a meaningful contribution to compassionate care.
精神关怀被认为是医疗保健的一个相关维度。在儿科临终关怀的背景下，精神关怀不仅仅是坚持某种精神世界观或宗教信仰。对在儿科重症监护病房去世的重症儿童的父母进行的访谈揭示了一种精神性的特征，即零碎且充满矛盾。我们将这种精神性称为脆弱，它反映了父母与已故孩子的联系，以及对死后某种团聚的希望。承认精神性的碎片可以成为父母在孩子临终阶段体验的一部分，这可以为富有同情心的关怀做出有意义的贡献。
