Department of Oncology, Rigshospitalet, Copenhagen University Hospital, Copenhagen, Denmark.
University of Kansas School of Medicine, Kansas City, KS, United States.
JMIR Mhealth Uhealth. 2019 Oct 3;7(10):e13829. doi: 10.2196/13829.
Adolescent and young adult (AYA) patients with cancer are a group with underexplored needs throughout treatment and in survivorship. This missing knowledge can influence their quality of life (QoL). Given this fact, we have developed a smartphone app based on a cocreation process and have an investigation of QoL among users planned as part of pilot testing this app. Future research is warranted to determine the effect of mobile health (mHealth) tools such as smartphone apps among the AYA cancer population.
The aim of this study was to investigate the feasibility of a smartphone app among AYA patients with cancer in active treatment and posttreatment, in a pilot test by measuring health-related QoL before and after the use of the app.
Participants were recruited via the youth support initiative and social organization for AYAs with cancer, Kræftværket, based at Rigshospitalet, University Hospital of Copenhagen, Denmark. Participants were evenly distributed in active treatment and posttreatment groups. After written informed consent, all participants were asked to use the app Kræftværket as they deemed appropriate over a 6-week period. The participants were asked to complete the 30-item European Organization for Research and Treatment of Cancer Quality of Life Questionnaire before and after the 6-week period. The collected QoL data were analyzed with t tests to determine differences between groups and from baseline.
In total, we enrolled 20 participants, 10 in active treatment and 10 posttreatment (median time after treatment was 4 months) group. Median age of the participants was 25 years. No differences in QoL were seen at baseline (P=.65). The posttreatment group experienced a significant increase in overall QoL after the 6-week period (global QoL: baseline 62.5, SD 22.3; after 6 weeks 80.8, SD 9.7; P=.04). For the group in active treatment, the QoL remained stable throughout the 6 weeks.
This study shows the feasibility and possible effect on QoL associated with the use of an mHealth tool in AYA patients. mHealth support tools are warranted for this population.
青少年和年轻成人（AYA）癌症患者在治疗和生存期间存在需求未被充分探索的情况。这种知识缺失会影响他们的生活质量（QoL）。鉴于这一事实，我们基于共创过程开发了一款智能手机应用程序，并计划在对该应用程序进行试点测试的过程中调查用户的 QoL。需要进一步的研究来确定移动健康（mHealth）工具（如智能手机应用程序）在 AYA 癌症患者中的效果。
本研究旨在通过在使用应用程序前后测量与健康相关的 QoL，在试点测试中调查在接受治疗和治疗后阶段的癌症青少年和年轻成人患者使用智能手机应用程序的可行性。
参与者通过丹麦哥本哈根大学医院里格医院的青少年支持倡议和青少年癌症社会组织“Kræftværket”招募。参与者平均分配在治疗中组和治疗后组。在书面知情同意后，所有参与者都被要求在 6 周的时间内根据自己的意愿使用“Kræftværket”应用程序。参与者被要求在 6 周周期前后完成欧洲癌症研究与治疗组织的 30 项生活质量问卷。使用 t 检验分析收集的 QoL 数据，以确定组间和基线的差异。
共纳入 20 名参与者，10 名在治疗中，10 名在治疗后（中位治疗后时间为 4 个月）。参与者的中位年龄为 25 岁。在基线时，QoL 没有差异（P=.65）。治疗后组在 6 周后整体 QoL 显著提高（总体 QoL：基线 62.5，SD 22.3；6 周后 80.8，SD 9.7；P=.04）。对于治疗中组，QoL 在 6 周内保持稳定。
本研究表明，在 AYA 癌症患者中使用移动健康工具具有可行性，并可能对 QoL 产生影响。该人群需要移动健康支持工具。
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