Lea Sarah, Martins Ana, Bassett Matt, Cable Maria, Doig Gary, Fern Lorna A, Morgan Sue, Soanes Louise, Smith Sam, Whelan Michael, Taylor Rachel M
University College London Hospitals NHS Foundation Trust, London, UK.
Teenage Cancer Trust, London, UK.
Eur J Cancer Care (Engl). 2018 Nov;27(6):e12972. doi: 10.1111/ecc.12972.
The end of active treatment is a stressful period for adolescents and young adults (AYA), but little is known about AYA experiences at this time point. The aim was to describe the issues young people experienced and identify interventions to support AYA at the end of treatment.
We conducted a rapid review of published primary research to identify what is currently known about AYA experiences of the end of treatment, the issues which arise and existing interventions to support AYA at this time.
Searches identified 540 papers of which 16 met the inclusion criteria. Five main themes were identified: physical/medical issues; psychological, social and emotional issues; information and support needs; sources of information and support; and difficulties accessing information and support. Within these broader themes, several subthemes were identified and explored further.
Adolescents and young adults are under prepared for the unpredictable and ongoing nature of the physical, psychological and social issues they face at the end of cancer treatment. Enabling young people's inclusion within their relevant social and educational peer networks should be a priority. Timely, structured and equitable information/support is needed to prepare AYA for treatment ending and subsequent reintegration to "everyday" life.
积极治疗的结束对青少年和青年成年人（AYA）来说是一个压力巨大的时期，但目前对于这一年龄段人群在这一时刻的经历了解甚少。本研究旨在描述年轻人在治疗结束时所经历的问题，并确定在治疗结束阶段为青少年和青年成年人提供支持的干预措施。
我们对已发表的原始研究进行了快速回顾，以确定目前关于青少年和青年成年人在治疗结束时的经历、所出现的问题以及此时支持他们的现有干预措施的相关知识。
检索共识别出540篇论文，其中16篇符合纳入标准。确定了五个主要主题：身体/医学问题；心理、社会和情感问题；信息和支持需求；信息和支持来源；以及获取信息和支持方面的困难。在这些更宽泛的主题中，还识别出了若干子主题并进行了进一步探讨。
青少年和青年成年人对癌症治疗结束时所面临的身体、心理和社会问题的不可预测性和持续性准备不足。应优先考虑让年轻人融入其相关的社会和教育同龄人网络。需要及时、结构化且公平的信息/支持，以使青少年和青年成年人做好治疗结束及随后重新融入“日常生活”的准备。
