Suppr超能文献

探索信任的图谱:患者和护理人员如何确定在线治疗声明的可信度。

Navigating the cartographies of trust: how patients and carers establish the credibility of online treatment claims.

机构信息

Sociology and Gender Studies, School of Social Sciences, Monash University, Melbourne, Vic, Australia.

Department of Anatomy and Neuroscience, Centre for Stem Cell Systems, School of Biomedical Sciences, University of Melbourne, Melbourne, Vic, Australia.

出版信息

Sociol Health Illn. 2019 Oct;41 Suppl 1:50-64. doi: 10.1111/1467-9566.12872.

Abstract

Digital media offer citizens novel ways of 'enacting' health and illness, and treatment and care. However, while digital media may so 'empower' citizens, those searching for credible information will be confronted with various, often-conflicting claims that may have 'disempowering' effects. This article uses Gieryn's concept of the 'cultural cartography' to explore the criteria that patients and carers employ in establishing the credibility of information on alleged treatments. Drawing on data from interviews with Australian patients and carers who have travelled or considered travelling abroad for unproven commercial stem cell treatments, the article examines how individuals assess rival sources of epistemic authority - science-based and non-science-based - as they search for credible information. As we argue, in a context where conventional treatment options are perceived to be limited or non-existent - which is likely to be the case with those suffering severe, life-limiting conditions - and the credibility of sources uncertain, matters of opinion and belief are prone to being interpreted as matters of fact, with potentially far-reaching implications for citizens' health. Revealing the mechanisms by which individuals ascribe credibility to health information, we conclude, has become crucial as digital media assume a growing role in health and healthcare and governments encourage citizens to become 'digitally literate'.

摘要

数字媒体为公民提供了新颖的方式来“表现”健康和疾病、治疗和护理。然而,虽然数字媒体可能使公民“赋权”,但那些寻找可信信息的人将面临各种相互冲突的主张,这些主张可能会产生“剥夺权力”的效果。本文运用吉耶恩的“文化制图”概念,探讨了患者和护理人员在确定关于所谓治疗方法的信息可信度时所采用的标准。该研究通过对澳大利亚的患者和护理人员进行访谈获得数据,这些患者和护理人员曾或考虑出国接受未经证实的商业干细胞治疗。本文研究了个人如何评估基于科学和非科学的知识权威的竞争来源,因为他们在寻找可信信息。正如我们所认为的,在传统治疗选择被认为有限或不存在的情况下(这可能是那些患有严重、生命有限的疾病的人),而且来源的可信度不确定,意见和信仰问题很容易被解释为事实问题,这可能会对公民的健康产生深远影响。我们得出结论,揭示个人赋予健康信息可信度的机制变得至关重要,因为数字媒体在健康和医疗保健领域发挥着越来越大的作用,政府鼓励公民成为“数字素养”的人。

文献检索

告别复杂PubMed语法,用中文像聊天一样搜索,搜遍4000万医学文献。AI智能推荐,让科研检索更轻松。

立即免费搜索

文件翻译

保留排版,准确专业,支持PDF/Word/PPT等文件格式,支持 12+语言互译。

免费翻译文档

深度研究

AI帮你快速写综述,25分钟生成高质量综述,智能提取关键信息,辅助科研写作。

立即免费体验