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[祝福还是诅咒?万维网作为自闭症和阿斯伯格综合征的信息来源]

[Blessing or curse? The World Wide Web as information source for autism and Asperger Syndrome].

作者信息

Kamp-Becker Inge, Stroth Sanna, Stehr Thomas, Weber Lisa

机构信息

Klinik für Kinder- und Jugendpsychiatrie, Psychosomatik und Psychotherapie, Philipps-Universität Marburg.

出版信息

Z Kinder Jugendpsychiatr Psychother. 2020;48(2):133-143. doi: 10.1024/1422-4917/a000693. Epub 2019 Oct 16.

Abstract

The World Wide Web is today one of the most common methods used for obtaining health-related information, though the quality of the information is sometimes questionable. The present study addresses the quality of the information source internet and the resulting implications and discusses examples related to autism spectrum disorder. We systematically evaluated 96 German websites, with the aim of estimating specific characteristic features, reliability of publications, presentation of information as well as overall website quality. We also analyzed the clinical implications of the presentations. Only 39 % of the websites provided references to scientifically well-founded information, whereas advertisements were found on 53 % of websites. The greatest percentage of false information (17 %) was disseminated concerning therapy. 75 % of the websites provided incomplete information. Only 10 % of websites discussed the impairment or familial burden. The quality of information was insufficient on 30 %, poor on 41 %, and good on only 6 % of the websites. Similar to results available for English-language websites, the quality of German websites providing health-related information can be considered low. Implications concerning confirmation bias, stigma, overidentification, in-group/outgroup, contrast and snowball effects are discussed.

摘要

如今,万维网是获取健康相关信息最常用的方法之一,尽管这些信息的质量有时令人质疑。本研究探讨了互联网信息来源的质量及其产生的影响,并讨论了与自闭症谱系障碍相关的例子。我们系统地评估了96个德语网站,旨在评估其特定特征、出版物的可靠性、信息呈现方式以及网站整体质量。我们还分析了这些呈现方式的临床意义。只有39%的网站提供了有科学依据的信息参考,而53%的网站上有广告。关于治疗的虚假信息传播比例最高(17%)。75%的网站提供的信息不完整。只有10%的网站讨论了损伤或家庭负担。30%的网站信息质量不足,41%的网站质量较差,只有6%的网站质量良好。与英语网站的结果类似,提供健康相关信息的德语网站质量可被认为较低。文中还讨论了确认偏差、污名化、过度识别、内群体/外群体、对比和雪球效应等问题。

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