New York-Presbyterian Morgan Stanley Children's Hospital, Columbia University Medical Center, New York, New York.
Division of General Internal Medicine, Johns Hopkins Hospital and Health System, Welch Center for Prevention, Epidemiology and Clinical Research, Johns Hopkins Center for Health Equity, Department of Health, Behavior and Society at the Johns Hopkins Bloomberg School of Public Health, Baltimore, Maryland.
Ethn Dis. 2019 Oct 17;29(4):549-558. doi: 10.18865/ed.29.4.549. eCollection 2019 Fall.
Few family-oriented cardiovascular risk reduction interventions exist that leverage the home environment to produce health behavior change among multiple family members. We identified opportunities to adapt disease self-management interventions included in a blood pressure control comparative effectiveness trial for hypertensive African American adults to address family-level factors.
We conducted and analyzed semi-structured interviews with five intervention study staff (all study interventionists and the study coordinator) between December 2016 and January 2017 and with 11 study participants between September and November 2015.1 All study staff involved with intervention delivery and coordination were interviewed. We sampled adult participants from the parent study, and we analyzed interviews that were originally obtained as part of a previous study based on their status as a caregiver of an adolescent family member.
Thematic analysis identified family influences on disease management and the importance of relationships between index patients and family members, between index patients and study peers, and between index patients and study staff through study participation to understand social effects on healthy behaviors. We identified four themes: 1) the role of family in health behavior change; 2) the impact of family dynamics on health behaviors; 3) building peer relationships through intervention participation; and 4) study staff role conflict.
These findings inform development of family-oriented interventions to improve health behaviors among African American index patients at high risk for cardiovascular disease and their family members.
很少有以家庭为导向的心血管风险降低干预措施利用家庭环境来促使多个家庭成员改变健康行为。我们确定了机会,可以调整一项高血压控制比较效益试验中包含的疾病自我管理干预措施,以解决家庭层面的因素。
我们于 2016 年 12 月至 2017 年 1 月间对 5 名干预研究人员(均为研究干预者和研究协调员)进行了半结构化访谈,并于 2015 年 9 月至 11 月间对 11 名研究参与者进行了访谈。所有参与干预提供和协调的研究人员都接受了访谈。我们从母研究中抽取成年参与者,我们根据他们作为青少年家庭成员的照顾者的身份对原本作为先前研究一部分的访谈进行了分析。
主题分析确定了家庭对疾病管理的影响,以及索引患者与家庭成员之间、索引患者与研究同伴之间以及索引患者通过参与研究与研究人员之间的关系对健康行为的重要性,以了解健康行为的社会影响。我们确定了四个主题:1)家庭在健康行为改变中的作用;2)家庭动态对健康行为的影响;3)通过参与干预建立同伴关系;4)研究人员角色冲突。
这些发现为制定以家庭为导向的干预措施提供了信息,以改善心血管疾病高危的非裔美国索引患者及其家庭成员的健康行为。