Mckeaveney Clare, Noble Helen, de Barbieri Ilaria, Strini Veronica, Maxwell Alexander P, Reid Joanne
School of Nursing and Midwifery, Queens University Belfast, Belfast, UK.
Healthcare Profession Department, Padua University Hospital, Padova, Italy.
J Ren Care. 2020 Mar;46(1):35-44. doi: 10.1111/jorc.12301. Epub 2019 Oct 22.
Cachexia is a wasting syndrome found within a range of chronic illnesses/life-limiting conditions, however awareness and understanding of cachexia amongst renal Health Care Professionals has not been investigated.
To ascertain the awareness, understanding and treatment practices of Health Care Professionals who provide care for people with cachexia and end-stage renal disease.
Health Care Professionals were recruited via the European Dialysis and Transplant Nurses Association/European Renal Care Association in September 2018. This was an exploratory study using a mixed-methods approach with those who provide care for patients with end-stage renal disease and cachexia. An online survey and two focus groups were conducted. Descriptive statistics and inductive thematic analysis were used to explore current knowledge and practices in renal cachexia.
A total of 93 participants from 30 countries completed the online survey. Twelve Health Care Professionals agreed to participate in the focus groups. Reduced appetite, weight loss and muscle loss in relation to cachexia were accurately described, but the percentage of weight loss was unknown. The importance of multi-professional collaboration was recognised, however, the current management of cachexia was wide-ranging. Quality of life, patient-clinician communication and specialist support for carers were regarded as vital.
Timely identification and management of cachexia are needed to improve the quality of life for patients and appropriately support families. In order for these goals to be achieved, there is a need to increase awareness and understanding of cachexia amongst renal nurses.
恶病质是一种在一系列慢性疾病/危及生命的病症中出现的消耗综合征，然而，肾脏医疗保健专业人员对恶病质的认识和理解尚未得到研究。
确定为患有恶病质和终末期肾病的患者提供护理的医疗保健专业人员的认识、理解和治疗实践。
2018年9月，通过欧洲透析和移植护士协会/欧洲肾脏护理协会招募医疗保健专业人员。这是一项探索性研究，采用混合方法，针对为终末期肾病和恶病质患者提供护理的人员。开展了一项在线调查和两个焦点小组。使用描述性统计和归纳主题分析来探索肾性恶病质的当前知识和实践。
来自30个国家的93名参与者完成了在线调查。12名医疗保健专业人员同意参加焦点小组。准确描述了与恶病质相关的食欲减退、体重减轻和肌肉流失，但体重减轻的百分比未知。认识到多专业协作的重要性，然而，目前对恶病质的管理范围很广。生活质量、患者与临床医生的沟通以及对护理人员的专业支持被视为至关重要。
需要及时识别和管理恶病质，以提高患者的生活质量并为家庭提供适当支持。为了实现这些目标，有必要提高肾脏护士对恶病质的认识和理解。
