Department of Palliative Medicine, Comprehensive Cancer Center CCC Erlangen-EMN, Universitätsklinikum Erlangen, Friedrich-Alexander-Universität (FAU) Erlangen-Nürnberg, Erlangen, Germany.
Institute for Biomedicine of Aging, Friedrich-Alexander-Universität (FAU) Erlangen-Nürnberg, Erlangen, Germany.
Palliat Med. 2020 Feb;34(2):219-230. doi: 10.1177/0269216319881603. Epub 2019 Oct 29.
In end-of-life care hygiene, measures concerning multidrug-resistant bacterial microorganisms may contradict the palliative care approach of social inclusion and be burdensome for patients.
To integrate patients' perspectives on handling multidrug-resistant bacterial microorganisms at their end of life, their quality of life, the impact of positive multidrug-resistant bacterial microorganisms' diagnosis, protection and isolation measures on their well-being and patients' wishes and needs regarding their care.
A mixed-methods convergent parallel design embedded quantitative data on the patients' multidrug-resistant bacterial microorganisms' trajectory and quality of life assessed by the Schedule for the Evaluation of Individual Quality of Life in qualitative data collection via interviews and focus groups. Data analysis was performed according to Grounded Theory and qualitative and quantitative results were interrelated.
SETTING/PARTICIPANTS: Between March 2014 and September 2015 at two hospitals adult patients diagnosed with multidrug-resistant bacterial microorganisms and treated in a palliative care department or a geriatric ward were included in the sample group.
Patients in end-of-life and geriatric care reported emotional and social impact through multidrug-resistant bacterial microorganisms' diagnosis itself, hygiene measures and lack of information. This impact affects aspects relevant to the patients' quality of life. Patients' wishes for comprehensive communication/information and reduction of social strain were identified from the focus group discussion.
Patients would benefit from comprehensible information on multidrug-resistant bacterial microorganisms. Strategies minimizing social exclusion and emotional impact of multidrug-resistant bacterial microorganisms' diagnosis in end-of-life care are needed as well as adaption or supplementation of standard multidrug-resistant bacterial microorganisms' policies of hospitals.
在临终关怀卫生方面，涉及多药耐药细菌微生物的措施可能与姑息治疗的社会包容方法相矛盾，并给患者带来负担。
整合患者对临终时处理多药耐药细菌微生物、生活质量、多药耐药细菌微生物阳性诊断、保护和隔离措施对其幸福感的影响以及患者对其护理的愿望和需求的看法。
混合方法的收敛平行设计，嵌入了患者多药耐药细菌微生物轨迹和生活质量的定量数据，通过访谈和焦点小组收集定性数据，评估了个人生活质量评估时间表。数据分析根据扎根理论进行，定性和定量结果相互关联。
地点/参与者：2014 年 3 月至 2015 年 9 月，在两家医院，多药耐药细菌微生物诊断并在姑息治疗科或老年病房接受治疗的成年患者被纳入样本组。
临终关怀和老年护理患者通过多药耐药细菌微生物的诊断本身、卫生措施和缺乏信息报告了情感和社会影响。这种影响会影响与患者生活质量相关的方面。从焦点小组讨论中确定了患者对全面沟通/信息和减轻社会压力的综合愿望。
患者将受益于对多药耐药细菌微生物的可理解信息。需要制定策略，尽量减少多药耐药细菌微生物诊断在临终关怀中的社会排斥和情感影响，并适应或补充医院的多药耐药细菌微生物政策。
