Appalachian State University, Department of Health and Exercise Science, Boone, NC, USA.
Appalachian State University, Department of Health and Exercise Science, Boone, NC, USA.
Disabil Health J. 2020 Apr;13(2):100853. doi: 10.1016/j.dhjo.2019.100853. Epub 2019 Oct 26.
Multiple Sclerosis (MS) is a chronic neurodegenerative disease that results in deficits in physical and cognitive functioning. Research supports the use of physical activity (PA) to aid in MS symptom management and slow disease progression, however individuals diagnosed with MS are generally physically inactive. Social support has been shown to increase PA behavior in group exercise settings. Events such as Bike MS, a charity bicycle ride where individuals raise money for MS, could increase motivation for participation and therefore may be an ideal setting to introduce PA to individuals diagnosed with MS.
/Hypothesis: The objective of the current research was to explore motives for participation in a Bike MS event in individuals diagnosed with MS and their family members, and examine if their Bike MS participation has translated to long-term PA behavior change and positive quality of life outcomes.
A descriptive qualitative approach using semi-structured focus group, individual, and phone interviews, combined with observational field notes, was used to explore the experiences of seven individuals diagnosed with MS and four family members from two regional self-help groups who all actively participated in a Bike MS event.
Participants reported important social bonds, raising awareness for the cause, fundraising, long-term physical benefits, and overall increased quality of life as motives for participation. All participants reported long-term PA participation as a result of Bike MS participation.
Results support using Bike MS to increase long-term PA participation in individuals with MS, resulting in positive quality of life outcomes.
多发性硬化症（MS）是一种慢性神经退行性疾病，会导致身体和认知功能的缺陷。研究支持使用体育活动（PA）来辅助 MS 症状管理和减缓疾病进展，然而，被诊断患有 MS 的个体通常身体活动不足。社会支持已被证明可以增加团体运动环境中的 PA 行为。像 Bike MS 这样的慈善自行车骑行活动，个人为 MS 筹集资金，可以提高参与的动机，因此可能是向被诊断患有 MS 的个体介绍 PA 的理想场所。
/假设：本研究的目的是探讨参与 Bike MS 活动的 MS 患者及其家属的参与动机，并检验他们的 Bike MS 参与是否转化为长期的 PA 行为改变和积极的生活质量结果。
采用描述性定性方法，使用半结构式焦点小组、个人和电话访谈，结合观察现场笔记，探讨了来自两个地区自助团体的 7 名被诊断患有 MS 的个体和 4 名家属的经验，他们都积极参与了 Bike MS 活动。
参与者报告了重要的社会联系、提高对病因的认识、筹款、长期的身体益处以及整体生活质量提高作为参与的动机。所有参与者都报告说，由于参与 Bike MS，他们长期参与体育活动。
结果支持使用 Bike MS 来增加 MS 患者的长期 PA 参与，从而带来积极的生活质量结果。
