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精神关怀:降低患癌儿童面临生命终结的父母的脆弱性。

Spiritual Care: Minimizing the Vulnerability of Parents Whose Children With Cancer Face the End of Life.

作者信息

Petersen Cheryl L

机构信息

Carthage College, Kenosha, WI, USA.

出版信息

J Pediatr Oncol Nurs. 2020 Mar/Apr;37(2):105-115. doi: 10.1177/1043454219887509. Epub 2019 Nov 13.

DOI:10.1177/1043454219887509
PMID:31718403
Abstract

There is a distinct lack of literature related to the spiritual care of parents whose children with cancer are at the end of life. This has led to a dearth in evidence about how nurses may intervene with spiritual care interventions to best support these vulnerable parents. The purpose of this scoping review was to examine the evidence regarding the value of spirituality/spiritual care in minimizing the vulnerability of parents whose children were diagnosed with cancer and who faced the end of life. The Arksey and O'Malley methodological framework guided the analysis of the reviewed quantitative and qualitative literature. Spirituality and spiritual care provided bereaved parents and parents of children with cancer with necessary support and enhanced coping to allow them to better deal with this devastating experience. Spirituality and spiritual care instilled hope, assisted in the search for meaning and purpose, and guided parents to develop continuing bonds with their child. Through skillful communication, pediatric oncology nurses may guide parents of children who face the end of life to strengthen relationships that offer support, plan activities that provide opportunities for hope and connection, and identify sources of meaning in their experiences.

摘要

目前明显缺乏与身患癌症的孩子处于生命末期的父母的精神关怀相关的文献。这导致在护士如何通过精神关怀干预措施来最佳支持这些脆弱父母方面,证据不足。本范围综述的目的是研究关于灵性/精神关怀在将身患癌症且面临生命末期孩子的父母的脆弱性降至最低方面的价值的证据。阿克西和奥马利的方法框架指导了对所审查的定量和定性文献的分析。灵性和精神关怀为丧亲父母及身患癌症孩子的父母提供了必要的支持,并增强了应对能力,使他们能够更好地应对这一毁灭性经历。灵性和精神关怀注入了希望,有助于寻找意义和目的,并引导父母与孩子建立持续的联系。通过巧妙的沟通,儿科肿瘤护士可以引导面临生命末期孩子的父母加强提供支持的关系,规划提供希望和联系机会的活动,并在他们的经历中找到意义来源。

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Spiritual Care: Minimizing the Vulnerability of Parents Whose Children With Cancer Face the End of Life.精神关怀:降低患癌儿童面临生命终结的父母的脆弱性。
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Factors influencing the spiritual needs of patients with terminal cancer: a multicenter study in southern China.影响晚期癌症患者精神需求的因素:一项中国南方的多中心研究
BMC Palliat Care. 2025 Apr 22;24(1):112. doi: 10.1186/s12904-025-01749-8.
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