Public Health Nursing Graduate Program, University of São Paulo at Ribeirão Preto College of Nursing, Ribeirão Preto, SP, Brazil.
Interunit Doctoral Program in Nursing, University of São Paulo College of Nursing and the University of São Paulo at Ribeirão Preto College of Nursing. Ribeirão Preto, SP, Brazil.
Eur J Oncol Nurs. 2020 Feb;44:101692. doi: 10.1016/j.ejon.2019.101692. Epub 2019 Nov 11.
Most qualitative studies do not explore experience throughout the urologic cancer survival trajectory. Moreover, the evidence of the experience of cancer survivors that focuses on the contextual aspects of culture is scarce in oncology literature. This study aimed to analyze the survival experience of urological cancer from the perspective of men.
This was a narrative research based on the concepts of culture derived from the interpretative medical anthropologic approach. Semi-structured interviews were conducted with 10 male survivors of urological cancer at different survival seasons. Seven participants agreed to a second interview, which resulted in 17 interviews. The data were analyzed using a five-phase thematic analysis approach. The findings are presented as narrative syntheses. The standards for reporting qualitative research (SPQR) was used in this study.
Two narrative syntheses were constructed: "The journey of urological cancer: discovering oneself as a survivor" and "What I was and what I am today": the disruption on the body and life. The narrative synthesis shows that survivors undergo transitions of identity from being healthy men to wrecked men. The survivors tried to present themselves as normal men to keep their masculinity intact. However, the experience of survival constituted a process of liminality and biographical disruption.
The experience of surviving urological cancer has highlighted the physical, emotional, and social challenges experienced by these male survivors. It is recommended to oncology nurses that nursing care should be planned along survival seasons considering the survivors' individual and subjective experiences.
大多数定性研究并未探讨整个泌尿生殖系统癌症生存轨迹中的体验。此外，关注癌症幸存者文化背景方面的证据在肿瘤学文献中很少。本研究旨在从男性的角度分析泌尿生殖系统癌症的生存体验。
这是一项基于从解释医学人类学方法中得出的文化概念的叙事研究。对不同生存季节的 10 名泌尿生殖系统癌症男性幸存者进行了半结构式访谈。有 7 名参与者同意进行第二次访谈，共进行了 17 次访谈。使用五阶段主题分析方法对数据进行分析。研究结果以叙事综合的形式呈现。本研究采用了定性研究报告标准（SPQR）。
构建了两个叙事综合：“泌尿生殖系统癌症之旅：发现自己是幸存者”和“今天的我：身体和生活的破坏”。叙事综合表明，幸存者经历了从健康男性到受损男性的身份转变。幸存者试图表现得像正常男性一样，以保持自己的男子气概。然而，生存的经历构成了一个边缘和传记中断的过程。
泌尿生殖系统癌症的生存体验突出了这些男性幸存者所经历的身体、情感和社会挑战。建议肿瘤护理护士根据幸存者的个人和主观体验，沿着生存季节规划护理。
