University Centre for Nursing & Midwifery, Department of Public Health, Faculty of Medicine and Health Sciences, Ghent University, Belgium; Ghent University Hospital, Belgium.
UMC Utrecht, div. Julius Centrum, the Netherlands.
J Pediatr Nurs. 2019 Nov-Dec;49:e29-e35. doi: 10.1016/j.pedn.2019.07.015. Epub 2019 Aug 8.
Insight was sought in how a childhood cancer experience plays a role in daily life of adolescents and young adults (AYA) survivors.
A qualitative research in which semi-structured interviews were held with 21 AYA survivors of childhood cancer between the ages of 14 and 25. The AYA survivors were recruited from two pediatric oncology departments of two university hospitals in Belgium.
The current situation and behavior of AYA-survivors who have been treated for childhood cancer are covered in 5 categories: The Feeling of Being Different while Aiming for Normalcy in Relationships, Living with Existential Uncertainty, The Conscious Protection of Health, The Attachment to the Parent(s) with Whom the Cancer Experience was Shared, and The Desire to Be Meaningful to Others.
The AYA survivors did not feel that their cancer experience dominated their current daily life, yet, the cancer experience had an important impact on their functioning.
The findings of the study can be used to optimize holistic psychosocial care of AYA survivors. By starting from the key elements in their current functioning, health care professionals can tailor their support to the way in which AYA survivors have integrated their cancer experience into their everyday lives.
探究儿童癌症经历如何在青少年和年轻成人（AYA）幸存者的日常生活中发挥作用。
这是一项定性研究，对 21 名年龄在 14 至 25 岁之间的儿童癌症 AYA 幸存者进行了半结构化访谈。AYA 幸存者是从比利时两家大学医院的两个儿科肿瘤病房招募的。
目前的情况和行为的 AYA-幸存者谁接受治疗的儿童癌症涵盖在 5 类：不同的感觉，而瞄准常态在关系中，生活在存在的不确定性，有意识的保护健康，附件到父母（谁）与癌症的经验是共享的，和有意义的愿望给别人。
AYA 幸存者并不认为他们的癌症经历主导了他们目前的日常生活，但癌症经历对他们的功能有重要影响。
研究结果可用于优化 AYA 幸存者的整体心理社会护理。医护人员可以从 AYA 幸存者目前的功能关键要素出发，根据 AYA 幸存者将癌症经历融入日常生活的方式来调整他们的支持。
