Department of Rheumatology at Mackenzie Evangelical School of Medicine, R. Padre Anchieta 2770, Curitiba, Paraná, 80730-000, Brazil.
Medical School of the Pontifical Catholic University of Paraná. R. Imaculada Conceição, 1155 - Prado Velho, Curitiba, PR, 80215-901, Brazil.
Adv Rheumatol. 2019 Nov 21;59(1):51. doi: 10.1186/s42358-019-0093-5.
The Hand Mobility in Scleroderma (HAMIS) test was created to measure the degree of dysfunction of hand movements imposed by systemic sclerosis (SSc). The modified version (mHAMIS), with 4 of the 9 original items, was developed later. The goal of the present study was to translate and validate HAMIS and mHAMIS into Brazilian Portuguese and culture.
After direct and reverse translation and comprehension test in 10 SSc patients, HAMIS-Br was applied to another 32 patients with SSc. To evaluate internal consistency, intraobserver and interobserver agreement, and intraobserver and interobserver reliability, we used respectively the Cronbach's α coefficient, kappa concordance and intraclass correlation (ICC). The correlation between HAMIS-Br and mHAMIS-Br was evaluated and a factorial analysis was performed.
HAMIS-Br showed excellent internal consistency (Cronbach's α = 0.997), good intraobserver agreement (kappa between 0.78 [95%CI =0.57-0.99] and 1) and intraobserver and interobserver reliability (ICC = 0.993, 95% CI = 0.973-0.993 and ICC = 0.994, 95% CI = 0.987-0.997, respectively). The mHAMIS-Br presented similar results and excellent correlation with HAMIS-Br (r = 0.923). The factorial analysis extracted three groups of questions that explain 84.4% of the total variance, and that can be understood through the influence of certain movements in the interpretation of others: [1] questions whose interpretation is influenced by the extension of the fingers, [2] questions whose interpretation is influenced by flexion of the fingers, [3] volar flexion of the fingers, with similar correlation with both other factors.
HAMIS-Br and mHAMIS-Br showed good agreement, intraobserver and interobserver reliability, and internal validity. It is necessary to be attentive to the influence of certain limitations of movements in the interpretation of others.
硬皮病手部运动障碍（HAMIS）测试旨在测量系统性硬皮病（SSc）对手部运动功能的障碍程度。后来开发了包含 9 项原始项目中的 4 项的改良版（mHAMIS）。本研究的目的是将 HAMIS 和 mHAMIS 翻译成巴西葡萄牙语和文化。
在 10 例 SSc 患者中进行直接和反向翻译以及理解测试后，将 HAMIS-Br 应用于另外 32 例 SSc 患者。为了评估内部一致性、观察者内和观察者间一致性以及观察者内和观察者间可靠性，我们分别使用 Cronbach's α 系数、kappa 一致性和组内相关系数（ICC）。评估了 HAMIS-Br 与 mHAMIS-Br 之间的相关性，并进行了因子分析。
HAMIS-Br 显示出极好的内部一致性（Cronbach's α=0.997）、良好的观察者内一致性（kappa 在 0.78[95%CI=0.57-0.99]和 1 之间）和观察者内和观察者间可靠性（ICC=0.993，95%CI=0.973-0.993 和 ICC=0.994，95%CI=0.987-0.997）。mHAMIS-Br 也表现出相似的结果，与 HAMIS-Br 具有极好的相关性（r=0.923）。因子分析提取了三组问题，这些问题可以解释总方差的 84.4%，并且可以通过解释其他问题时受某些运动的影响来理解：[1]解释受手指伸展影响的问题，[2]解释受手指弯曲影响的问题，[3]手指掌屈，与其他两个因素的相关性相似。
HAMIS-Br 和 mHAMIS-Br 具有良好的一致性、观察者内和观察者间可靠性以及内部有效性。在解释其他问题时，需要注意某些运动受限的影响。
