Govindaswamy Priya, Laing Sharon, Waters Donna, Walker Karen, Spence Kaye, Badawi Nadia
Grace Centre for Newborn Care, Children's Hospital at Westmead, Sydney, New South Wales, Australia.
Sydney Medical School, University of Sydney, Sydney, New South Wales, Australia.
J Paediatr Child Health. 2020 Apr;56(4):512-520. doi: 10.1111/jpc.14673. Epub 2019 Nov 27.
As more babies survive major neonatal surgery, the quality of life of the whole family is a major focus of health care. While there is evidence suggesting that parents of babies admitted to neonatal intensive care units (NICUs) experience high levels of stress, little is known about stressors in parents whose infants also require neonatal surgery. This study identified fathers' and mothers' stressors in a surgical NICU.
Parents of infants admitted for general surgery to the NICU at a tertiary children's hospital from February 2014 to September 2015 were eligible for enrolment. Parents completed the Parental Stressor Scale: NICU to measure levels of stress related to three subscales: sights and sounds, infant appearance and parental role alteration, using a 5-point Likert scale.
Data for 111 parents (57% mothers) showed parental role alteration as the greatest stressor for parents (M = 2.98, standard deviation (SD) = 0.89), particularly for mothers, followed by infant appearance (M = 2.84, SD = 0.95). Both fathers and mothers rated feeling helpless (M = 4.1, SD = 1.0), unable to protect their baby (M = 4.1, SD = 0.9) and seeing their baby in pain (M = 3.9, SD = 1.2) the most common, most stressful experiences and highest contributors to overall stress in the surgical NICU environment.
Parental role alteration is the greatest stressor for parents in the surgical NICU. Reducing stress for parents of infants undergoing neonatal surgery requires management of the infant's pain and strategies to support parents in their role in the NICU.
随着越来越多的婴儿在重大新生儿手术后存活下来，整个家庭的生活质量成为医疗保健的主要关注点。虽然有证据表明入住新生儿重症监护病房（NICU）的婴儿的父母承受着高水平的压力，但对于其婴儿也需要进行新生儿手术的父母所面临的压力源却知之甚少。本研究确定了外科NICU中父亲和母亲的压力源。
2014年2月至2015年9月期间在一家三级儿童医院的NICU接受普通外科手术的婴儿的父母符合纳入条件。父母使用5点李克特量表完成了《父母压力源量表：NICU》，以测量与三个子量表相关的压力水平：视觉和声音、婴儿外貌以及父母角色改变。
111名父母（57%为母亲）的数据显示，父母角色改变是父母最大的压力源（M = 2.98，标准差（SD）= 0.89），尤其是母亲，其次是婴儿外貌（M = 2.84，SD = 0.95）。父亲和母亲都将感到无助（M = 4.1，SD = 1.0）、无法保护自己的孩子（M = 4.1，SD = 0.9）以及看到孩子疼痛（M = 3.9，SD = 1.2）评为最常见、最具压力的经历，也是外科NICU环境中总体压力的最大贡献因素。
父母角色改变是外科NICU中父母最大的压力源。减轻接受新生儿手术的婴儿父母的压力需要控制婴儿的疼痛，并采取策略来支持父母在NICU中的角色。
