Department of Sociology and Social Research, University of Trento, Trento, Italy.
Sociol Health Illn. 2020 May;42(4):689-704. doi: 10.1111/1467-9566.13049. Epub 2019 Dec 16.
In the dominant narrative of bioethics and biomedical discourse on public Umbilical Cord Blood (UCB) banking, the ethical value of donating UCB is unproblematically associated with the clinical quality of collected UCB. This article shows that this view is analytically untenable as it overlooks tensions and conflicts between the social values of donation and the clinical value of banked UCB in concrete arrangements regarding the logistics of UCB donation and collection. Adopting the notion of registers of valuing (Heuts and Mol 2013: Valuation Studies, 1, 2, 125-46) and analysing the case of the Italian network of public UCB banks and collection sites, this article shows how conflicting registers of valuing concerning UCB can shape different organisational models of UCB donation and collection, in which social values and clinical value are not unproblematically conflated. The article aims to demonstrate that the functioning of biobanking arrangements is dependent on how different values are accomplished and aligned in concrete practices of tissue donation and collection.
在生物伦理和关于公共脐带血(UCB)库的生物医学话语的主导叙述中,捐献 UCB 的伦理价值与所采集的 UCB 的临床质量毫不含糊地联系在一起。本文表明,这种观点在分析上站不住脚,因为它忽略了在关于 UCB 捐献和采集的后勤安排中,捐赠的社会价值与存储的 UCB 的临床价值之间的紧张关系和冲突。本文采用价值登记(Heuts 和 Mol 2013:《价值研究》,1,2,125-46)的概念,并分析了意大利公共 UCB 银行和采集点网络的案例,展示了关于 UCB 的相互冲突的价值登记如何塑造 UCB 捐献和采集的不同组织模式,在这些模式中,社会价值和临床价值并没有毫不含糊地融合在一起。本文旨在表明,生物库安排的运作取决于在组织的实践中,不同的价值是如何完成和协调的。